As you can imagine we have had a very big day. I’ve watched my mother suffer with Trigeminal neuralgia for years now and this day was both long hoped for and feared. When it finally happened it felt completely unexpected!
The word ‘happy-scared’ has been common in our daily chats.
But, the good news! She’s come through very well. My sister and I spent a while with her in the ICU and she managed to crack a couple jokes, which I take as a good sign!
Her doctor said things went well. I shall leave the details for her to explain.
I just want to say a thank you to everyone here. She speaks of you often, and your discussions have been a source of comfort and inspiration for her.
Thank you so much for your update!
I’ve been thinking of her all day.
I have a good feeling too!
Pass on some gentle hugs for your dear Mom, positive thoughts!
Mimi
So here I am more than 24 hours post op and absolutely no nausea! What a blessing. The surgery was 4hours 20minutes. Lots of vessels wrapped around both the seventh and fifth nerves, so both decompressed. I was so relieved to know that for sure. And that I didn’t have the surgery for nothing. My incision goes from top of ear to below the ear. Surgeon said it might take several days for me to feel relief, or even a week or so but he is optimistic. M still in ICU for the time being but should be able to go home in a few days. Yea!
YeY Bellalarke!! Now put away your electronic devices and focus on healing!! ( although its so good to hear from you!) ; )
Sending positive healing vibes your way my friend, (( hugs )) Mimi xx
I did talk to surgeon late yesterday. So here is less garbled news: This is my third day and I’m pretty good. No nausea or puking, which is really helpful. Both fifth and seventh cranial nerves were decompressed and surgeon has good feeling about them. There was a,third issue with the glossopharyngeal nerve, number 9 but the artery was just following it long and no obvious node pushing in so he left that for now. We’re still not sure if scalp issues are occipital neuralgia or that’s called “convergence” that is, C2-3 nerves getting turned on my all that activity. He thinks in about six weeks we should know where I stand and pain will have subsided quite a bit. It could be a long progress as the nerves settle down from being handled. Going home tomorrow. Good prognosis. Whopping incision still pretty tight and painful and looking forward to shower this morning. I did get about six hours sleep face down on side in pillows, it worked.
Okay, going to rest now so K C can only squak a bit!
Wow Bellalarke, sounds as though lots was going on in there! I hope as things settle down you notice a considerable difference in pain levels…remember it could take time…in the meantime take good care of you! Glad you managed to get some sleep!
Mimi xx