Well today is day three and I just ate for the first time cause this one hit really hard. I have been in bed for three days and it is so hard when you have kids. I lay in bed and hear them doing there own thing wishing that I could be there with them. I have two six-teen year old girls and an eight year old boy. I have always been very involved with them so this is so hard . I was diagnosed in September 2008 with TN and I have a lot of bad spells but when they hit this hard, the pain over comes me and I sleep a lot on the medication. Sorry for whining, it just so damn hard at times. I had a few good days and then it comes back with a vengence. Its so hard to cope sometimes. Im glad we have this support group cause I know my husband and kids really don’t understand what this is like and how much it can bring you down. Thanks for letting me vent! Laying down again cause its to hard sitting up. bye for now.
I’m sorry you had such a bad weekend Clemie. You don’t have to apologize at all.
Maybe someone on the LTN network will make one of their loved ones available for your husband and/or daughters to talk to.
Thanks Scott,
Well I woke up this morning and it isn’t 100% but it is much better. Thanks for the support, it is terrible to be put out like that…
Ya I am going to have a good day !
CLEMIE
I KNOW
I HAVE TWO TEENAGE CHILDREN AND MY MOM HAS TO TAKE CARE OF THEM. WE LIVE WITH HER NOW. IT IS HARD SOMETIMES BUT I AM GRATRFUL FOR THEIR HELP. I CAN NO LONGER WORK AND I FIND MYSELF DEPRESSED SOMETIMES BUT I TRY TO REMEMBER THAT GOD IS IN CONTROL AND HAS A PLAN AND PURPOSE FOR ME. YES YOU ARE GOING TO HAVE A GOOD DAY. PRAYING FOR YOU
JOYCE
Thanks everyone for you support, I did have a better day not 100% by any means but much better. We just received a good drop of snow and my face is acting up some so I remain inside and hope for the best. Life could be much worse. I too Joyce am off work and my Dr. has filed for long term disibility but unsure if it will be covered with this condition. My disibility specialist at work is very positive about it but I know they can be very hard to deal with. The only other thing would be missing a lot of work… Time will tell. Talk soon,
Clemie