I have had 9 days of severe head and face pain from ATN. Nothing seems to be managing the pain.I am on trileptal and lamotrigine. Went to the Doc yesterday to see if a virus or something else has set it off...She had no answers......Anyone have any suggestions?
My wife Gilly has been writing about my journey with TN on her blog.
This week she grapples with the issue of the unfairness of life and how wallowing in it a little as well as finding ways to move forward are both needed to find strength to carry on.
HERE is the best place place to wallow a while and find the strength to carry on! I have had ATN 3 months now. I take Neurontin, advil, and sometimes Percocets. With this regimine, I stay pretty much out of pain. However, I am headed to the Neurologists today and I need to share with him that I am having body aches and flulike symptoms, clumsiness, and mental fog from the Neurontin. He may be lowering my 2700mg and adding something else.
I also asked if it could be from an infection as I had a fever blister on my face when I first started with this. They didn't think so but gave me steroids, antibiotics and antivirals, just in case. Guess what...it didn't go away.
Hang in there but know that ATN is treated differently than TN. Pain meds do help sometimes.
Jon - my TN, type 1, is also flaring like mad, since a few days before we traveled to my in-laws for Thanksgiving. And yes, read whatever irony you like into that coincidence. I saw my neuro today, and she added Baclofen to my Tegretol. But before I fill that script, I am doing some pretty intense inner work to try and RELAX. Maybe it will help. I flare a lot when I travel. But now we're home and life is regular again. I just have to get my nerves to notice. I wish you luck with whatever you try to get that pain down. Not a nice way to spend the day, is it?
I don't see this situation really as unfair... but more of a nightmerise situation... some of the time i don't REALLY belive i'm living in this reallity and that this reallty does exists.
it's more of unimaginable.
hang on in ther.e
Yes - maybe it IS unfair if to think of it. There IS a limit to how much one can bare.