Anyone with tooth sensitivity from TN? If so, what meds relieve it?

I have tooth sensitivity in my upper teeth in different parts depends on where the trigger point decided to be usually on the side near the front of mouth oral gel works using sensitive tooth paste but usually it means an attack is not to far behind my teeth will get sensitive about a week or two before a major attack or if I lower my meds. I take Gabapentin 2400mg a day and 900mg of oxcarazepine(Trileptal) I try to lower my meds when I think the attacks have gone away only to be remined that they have not. The tooth sensitivity is just one of the spot that is my trigger for my TN My triggers are on my face by nose around my eye my cheek, my forehead and in my mouth on the gum lines and teeth and some times the roof of my palet near the teeth so eating drinking and talking can cause those horrible electrical shocks the only choice is using straws but sometimes it hurts worse if I use straws drinking room temp drinks eating on only one side of mouth which sucks I know I love a good chocolate hersey bar but the sugar seems to set off the sensitivity and I get shocks or spicy foods , crunchy food stay away from any food or liquids that will excite or senses(nerves). Some times I just have to eat or swallow through the pain when it is really bad it takes all my strength and courage just to take my meds or even talk mine gets so bad I can not talk at times.My teeth always have this weird sensitive feeling all the time it sucks you may have to up your meds . Oral gel is my friend it may hurt when you putting it on but grin and bear it and it will numb your gums for a little while for a little bit of relief but it makes food taste nasty but you can atleast eat it. even helps it my gum lines are my trigers and any movement of my lips against my gums will set off shocks it will give me a little relief

Sorry if I have rambled it is the meds they make me a little loopy plus I had a glass of wine with dinner so I an even more loopy good luck I am not sure if I helped any.

I have tooth sensitivity in my upper teeth in different parts depends on where the trigger point decided to be usually on the side near the front of mouth oral gel works using sensitive tooth paste but usually it means an attack is not to far behind my teeth will get sensitive about a week or two before a major attack or if I lower my meds. I take Gabapentin 2400mg a day and 900mg of oxcarazepine(Trileptal) I try to lower my meds when I think the attacks have gone away only to be remined that they have not. The tooth sensitivity is just one of the spot that is my trigger for my TN My triggers are on my face by nose around my eye my cheek, my forehead and in my mouth on the gum lines and teeth and some times the roof of my palet near the teeth so eating drinking and talking can cause those horrible electrical shocks the only choice is using straws but sometimes it hurts worse if I use straws drinking room temp drinks eating on only one side of mouth which sucks I know I love a good chocolate hersey bar but the sugar seems to set off the sensitivity and I get shocks or spicy foods , crunchy food stay away from any food or liquids that will excite or senses(nerves). Some times I just have to eat or swallow through the pain when it is really bad it takes all my strength and courage just to take my meds or even talk mine gets so bad I can not talk at times.My teeth always have this weird sensitive feeling all the time it sucks you may have to up your meds . Oral gel is my friend it may hurt when you putting it on but grin and bear it and it will numb your gums for a little while for a little bit of relief but it makes food taste nasty but you can atleast eat it. even helps it my gum lines are my trigers and any movement of my lips against my gums will set off shocks it will give me a little relief

Sorry if I have rambled it is the meds they make me a little loopy plus I had a glass of wine with dinner so I an even more loopy good luck I am not sure if I helped any.

I have never had root canal and have classic TN and have tooth sensitivity when I have TN flare ups sometimes a flare up will last months or weeks I used to have like major suden tooth pain for years before the electrial shock stared in the face. I hate the dentist so I never when to get it check out and then it would go away one day it did not go away and got servere with the face pain went to dentist said nothing was wrong with teeth went to PCP doc and he said it was TN They say it was the stating of the TN as it was progressing this went on for a few years before it got so severe the I finally had to do something about it. I have never had much dental work but I know a lot of people have had TN show up after dental work

Woman with the electric teeth said:

Hi Jane, yes, this common tale is the main reason why I don't want to do a root canal if I can avoid it. 1)it doesn't seem to help anyone who has it done and 2) I'm frightened it will actually make the situation worse. Reading how many people get TN after dentistry makes me think that the dentistry may not actually have caused it in all of those cases, but going so close to the trigeminal nerve tips an existing condition over the edge and so it becomes full-blown TN.

It would be interesting research for someone to do to see if there is anyone with TN who hasn't had a root canal. They certainly seem to be the most commonly recurring procedure in sufferers.

I've never asked you, is your tooth/teeth classically sensitive, i.e. wincing sharp pain when subjected to hot/cold/sweet or is it more of a generalised toothache (burning, throbbing, keeps you awake at night with a hot water bottle type)?

justjane37 said:

Mine is the same. My left side TN always stems for the same tooth. It was unnecessarily root canaled over a year ago. My dentist has looked at it many times, taken x-rays and done cold tests. It is dead as far as he is concerned and I should have NO feeling in that tooth.

Well even when my medication is working well that tooth still hurts. If I touch it, put any pressure on it or floss around it the pain is terrible.

My dentist did file it down a little bit so that it doesn't touch my other teeth when I bite. I also have trouble eating on that side.

I know the pain you are feeling. It has been my life for the past 2 1/2 years.

I would have to ask two questions. First would be if your tooth/pain sensitivity is as a result of a recent or current dental procedure? If so, what and how long ago? Second, what do you mean by sensitive? Everyone has their own idea. Sensitivity and pain do not have to co-exist.

I had tooth pain on #14 after 3 crowns, two root canals and numerous filling on the same tooth. This caused a lesion on the tooth and they had to pull it out anyway. I have TN, SUNCT, RCPS and a dozen other things. I have a constant 24/7 unbearable gnawing, boring, piercing on the whole left side of my face with all the teeth affected. If I eat or drink, hot or cold, it just makes the symptoms worse and increases the pain.

Is your pain only present when you eat or drink or is it constant? When I have a bad attack, the burning, freezing pain hits the left side of my tongue, pallet, lips and throat. sometimes the pain is so unbearable I cannot breath. I have one tooth, #13, which is right in the middle of the problems that has a filling.

On certain attacks I don't feel the filling. The tooth feels sharp and ragged and my brain thinks the filling is foreign and I contort my face trying to suck the filling out with all my might. Of course this usually turns into a major migraine and sometimes a herpatic infection on the left side as well. There are so many "sensitivities" to my teeth it's a full time job.

I take Lyrica, Nortriptyline, Zyprexa and Percocet every day which gives me 90 minutes to 2 hours where I am able to function twice a day. The Notripyline works well but has lots of negative side-effects. I hope this helps in any way.

Root canals, crowns and fillings can take some time to settle down, can be weeks or months in some cases. It can cause sensitive pain when eating and drinking, can also give refered pain to adjacent teeth.

Root canals can fail, old fillings can leak, can cause micro cracks that will not always show up on an x-ray (this can cause tooth sensitivity) the dentist cannot always see the result of a damaged worked tooth on an x-ray.

For those that have teeth causing terrible pain when eating, are those teeth with root canal work, old fillings etc ?

Hi Kath, thanks for the great replies - very informative. I share quite a few things in common with you. I haven't been able to identify any actual trigger zones yet, although I know what my triggers are. The only thing I know for sure is mine is predominantly inside my mouth, i.e. it is triggered mostly by temperature and sweetness. The only exception to this is going inside/outside, the shower and, I suspect, wind. I'm still not sure if the wind triggers it just because it's temperature sensitive or whether it's the sensation of the wind itself. Until we messed with the dose and pushed my Tegretol up to 800mg, the Tegretol was dealing with the shocks. As soon as we brought it down 100mg to 700mg, it got a lot more unstable and shocks are breaking through more easily, but still not as viciously as pre-medication. Those were very bad and reduced me to pureed food, drinking through a straw, no sweet foods at all and very little talking. Going out was a nightmare. I live in terror of going back there.

I find getting upset to be the single worst thing to do; it's like it just triggers it off all by itself. It's very hard, because some things just are stressing, like going to bloody doctors! So how do you avoid that? I just have to keep dragging myself back down and try and be calm. Not easy.

This oral gel you mention sounds very interesting, what is it exactly? Some kind of sensitive tooth product? I'm in the UK, but if you give me the name of it I can look it up on a US site and see if I can find a UK equivalent.

I have tooth sensitivity all the time, by the way, as in a constant awareness of it. It is accompanied by a metallic taste in my mouth, which comes and goes. It's not as acute as it was since we put the meds up, but has come back a little with the latest adjustment. Previously that was a sensation of my teeth being electrified all the time. Very unpleasant. I haven't been able to eat on the right side of my mouth at all since this started. That's where my 'sensitivity' is. It is far too painful and temperamental.

If you could let me know the name of the oral gel and what it is used for that would be great!



KATTHOMPSON4 said:

I have tooth sensitivity in my upper teeth in different parts depends on where the trigger point decided to be usually on the side near the front of mouth oral gel works using sensitive tooth paste but usually it means an attack is not to far behind my teeth will get sensitive about a week or two before a major attack or if I lower my meds. I take Gabapentin 2400mg a day and 900mg of oxcarazepine(Trileptal) I try to lower my meds when I think the attacks have gone away only to be remined that they have not. The tooth sensitivity is just one of the spot that is my trigger for my TN My triggers are on my face by nose around my eye my cheek, my forehead and in my mouth on the gum lines and teeth and some times the roof of my palet near the teeth so eating drinking and talking can cause those horrible electrical shocks the only choice is using straws but sometimes it hurts worse if I use straws drinking room temp drinks eating on only one side of mouth which sucks I know I love a good chocolate hersey bar but the sugar seems to set off the sensitivity and I get shocks or spicy foods , crunchy food stay away from any food or liquids that will excite or senses(nerves). Some times I just have to eat or swallow through the pain when it is really bad it takes all my strength and courage just to take my meds or even talk mine gets so bad I can not talk at times.My teeth always have this weird sensitive feeling all the time it sucks you may have to up your meds . Oral gel is my friend it may hurt when you putting it on but grin and bear it and it will numb your gums for a little while for a little bit of relief but it makes food taste nasty but you can atleast eat it. even helps it my gum lines are my trigers and any movement of my lips against my gums will set off shocks it will give me a little relief

Sorry if I have rambled it is the meds they make me a little loopy plus I had a glass of wine with dinner so I an even more loopy good luck I am not sure if I helped any.

Hi Richard, no my sensitivity is nothing to do with dental work. I hadn't been to the dentist for about two years before the onset of pain. I went there because I'd had sensitivity, which had got worse, but was still manageable, but then I started getting electric shocks. The dentist took X-rays, found nothing, but decided the big old filling in that side was probably the culprit and opened the tooth up, prior to doing a Root Canal. Fortunately, or not, depending on your point of view, the sedative dressing she put in did not work at all and I was sufficiently suspicious of this (combined with the severity of the pain with nothing showing on the Xrays) to look it up on the net and book an appointment with a doctor. The doc thought it was TN without any prompting from me, so he put me on Tegretol.

I decided against the root canal, which was a VERY tough call, and actually why I put this post on originally, and decided to get her to seal the tooth up again, which she did. Since then I have wavered on and off and worried and fretted but come to the conclusion that I did the right thing. I don't believe it's a tooth problem, and the fact that Tegretol worked for me on a very low dose kind of proved it. Also, like all TN sufferers I have some very strange and some fairly classical symptoms that don't fit a tooth problem.

As to the actual pain in the teeth. It is very definitely a sensitivity, just like the ones you would use sensitive toothpaste to deal with, except it is more acute. It is also with me 24/7, in that I am aware of it. It is very sensitive to temperature, even very slight variations, and it hates sweet. I can't eat on that side of my mouth because it is just too uncomfortable, and it hates any change in temperature at all. This makes it hurt outside going in and inside going out. It particularly loathes supermarkets, which are positive danger zones of variable temperature!

I used to get pain, obviously, but the shocks are largely under control now, but I also had burning and throbbing pains that would reach crescendos and die down again. It took me a long time to realise that as dosage of the drugs went up, my symptoms would also transform slightly and become a weaker version of themselves - hence the burning and throbbing.

I do share a couple of things with you. My fillings on my TN side seem to act like gate posts for the pain, which tends to shoot from one to the other. I also have a theory that my brain thinks the fillings are alien bodies and reads them as a threat. This was particularly true on lower meds, when my teeth on that side all felt electrified and tasted it too, like there was a battery below them. They tasted metallic for the longest time, and it is only at recent higher doses that that has died down.

I notice you are taking some conventional opiate painkillers. I take it you have ATN? I notice a lot of people with atypical TN can still use conventional painkillers. I wish! I asked my neurologist about taking an anti-depressant, which I see you're also using (I think; these drugs have so many different names!), but she said they were no good for this type of TN. I'm having my Tegretol dropped to 600mg because of unmanageable side effects, but we're adding in Lamotrigine, I think. Don't know what dose yet, and it will be a week till I get them. The part of me that would like to eat in my whole mouth is looking forward to that possibility, but the part of me that suffered through Tegretol side effects is dreading new ones!

I had extreme tooth sensitivity and sought advice from 2 separate dentists who did extensive testing and said my teeth were fine and when the TN went into remission so did the sensitivity and now I'm back to normal.

Hi Busy, that's very reassuring to hear - thanks for taking the time out to tell me. I still suffer occasionally from wondering if I did the right thing in cancelling a root canal on a 'suspected' tooth (which was ok on X-ray), but I feel more reassured as time goes by. The trouble with TN is it's a real mimic, and really looks and feels like toothache.

Absolutely great to hear your sensitivity went with the TN pain. That's my ultimate hope for getting my meds right - that I could get to a place where the sensitivity became normal and manageable - i.e. went back to being what it was before the onset of the disease. I really miss eating on both sides of my mouth!

Orajel is the brand name there is also a brand called anbesol they are both toothache gels they also make it for teething babies the main ingredient is Benzocaine. When mine is so bad it is the only way I can eat or talk the shower bothers me too I have been lucky the wind has not bothered me yet the air conditioning in the car or house bother me I use hand warmers I hold them to my face if I can it helps when the wind is cold or the air condition or fans blow on me, I have used lidocane cream or patches on my face to numb the triger points so thing like mild touch and the wind do not bother me as much it works some of the time make it a little less sensitive. I live in Arizona it is very hot here in the summer usually somewhere around 105 to 110 the heat tends bother me so does the barometric pressure when it fall Good luck and God Bless it is a horrible condition I hope I have helped you a little bit some time it just helps to have someone to talk too that has the same thing so you do not feel so alone I wish you all the best and to have as many pain free days as possible

God Bless Kathy

Thanks a lot for that, Kathy - all very helpful! Can I ask, do you have TN 1, i.e. 'classic' TN? If so, do all these things stop the electric shocks, or do they just deaden them a little when they do happen?

I am sorry they do not deaden the shock what that does is make the triger pointsless sensitive or a little numb so they do not single the nerve to shock you the socks come from the trigeminal nerve in the brain but you can numb the trigger points which stops them from sending the single to the Trigeminal nerve to shock at least that how I under stand it and I have classic TN1 some time I think when the meds work the break through pain comes through a little muffled so we do not get the wholes shock so the pain feel a little differnt some times at least that is how it works for me
Good luck
Woman with the electric teeth said:

Thanks a lot for that, Kathy - all very helpful! Can I ask, do you have TN 1, i.e. 'classic' TN? If so, do all these things stop the electric shocks, or do they just deaden them a little when they do happen?

Hi Kathy, thanks for the clarification. I have a bit of a problem with trigger points, since mine seem to be temperature, rather than touch. I've yet to actually find a trigger point on my face, all mine seem to be inside my mouth. That makes it a lot harder to treat with external things. But I was hopeful that maybe Lidocaine mouthwash might help. Or anything else I can actually put in my mouth. I am going to look into all of these, so thanks very much for them. I really appreciate it.

KATTHOMPSON4 said:

I am sorry they do not deaden the shock what that does is make the triger pointsless sensitive or a little numb so they do not single the nerve to shock you the socks come from the trigeminal nerve in the brain but you can numb the trigger points which stops them from sending the single to the Trigeminal nerve to shock at least that how I under stand it and I have classic TN1 some time I think when the meds work the break through pain comes through a little muffled so we do not get the wholes shock so the pain feel a little differnt some times at least that is how it works for me
Good luck
Woman with the electric teeth said:

Thanks a lot for that, Kathy - all very helpful! Can I ask, do you have TN 1, i.e. 'classic' TN? If so, do all these things stop the electric shocks, or do they just deaden them a little when they do happen?

Hi, just got back home from a trip, so sorry for late reply. First, I don't know what the cause of my TN2 is, though I suspect it is a virus!. But I can't rule out a dental cause. I've known for years that my lower and upper jaw are not aligned correctly. The dentist didn't see it, BUT THE HYGIENIST DID! At which point he opined that it could not be the source of my pain. When the tooth pain started (it was in an upper molar and also in the one directly below), my regular dentist was not available, so I saw someone else. The grinding is painless, the simplest thing, takes a few minutes -- until the teeth fully engage like they are supposed to, as opposed to a corner hitting first. He didn't even charge me for the work -- because my simple description provided him "the clue" and he was happy for picking it up. I have no idea if this small problem could be the cause of TN1 when the patient doesn't have TN2. All he could say was that "anything" could trigger pain, and that what I told him helped him pinpoint the trigger. I can't argue with the results. When my regular dentist heard (from my wife) that the guy he sent me to diagnosed me with TN, he said that it was impossible. He is no longer my regular dentist. Anyway, we would get into political arguments with me in the chair and his instruments in my mouth, which put me at a disadvantage. No great loss.

Woman with the electric teeth said:

Hi Howard, believe it or not I've suspected a bite connection from the very beginning, but no-one else thinks it's valid. When I very first went to the dentist I took my nightguard with me (this was before we learned it was TN) and showed her the fact that there is a big hole ground away in it right over my 'sensitive' zone. I know grinding can cause gum recession and tooth sensitivity, but she just said 'That's interesting' and paid it no more heed. I also told my doctor, but he's not interested either.

I actually know my bite is off because some years ago my incisors stopped meeting on that same side. I told my dentist at the time and I think he put it down to my teeth moving about due to gaps in molars (practically no molars on the right side- again the same side). To me it all seems kind of cumulative and suspicious, but no-one else seems to think so, so I ran out of people to ask. If they think it's not important I assume it's not important.

What is the tooth grinding thing they did for you? It sounds a bit lethal! I have dental phobia, which complicates the issue, as I'm not good with dental procedures!

thehoward said:

Darn it, my post disappeared. Look, there's a chance it comes from a bad bite and you need some simple tooth grinding. I have had TN 2 for decades, but came down with toothache plus sharp head pains on the same side. I almost went to the ER. Dentist didn't know I had TN2 (it's the first time I visited him), yet he diagnosed me with TN1, ground my teeth to correct the bite, and sent me home convinced he was a jerk. The pains, tooth and head, vanished that evening. I remain a TN2er, unfortunately, and now appreciative of what you Typicals have to live with.

My apologies as I'm rushing and did not read all the replies. No doubt meds will likely be needed for severe pain.

But I just heard from someone that a product that you can buy at Amazon has been helpful for this. It's called:

Blistex Kanka Soft Brush Tooth/Mouth Pain Gel, Professional Strength

It is lidocaine that is on a brush that can be used within the mouth

Might be worth a try

Hi Howard, thanks for filling that in. I suspect with mine being a classic TN1 I won't be able to land this problem at the door of my bite! But I did wonder if it contributed. I'm due to go for an MRI on the 5TH of August, so that might help clarify things. If they do find a vascular compression, I can't really blame it on a faulty bite, but I'm keeping it in the back of my mind - never know when it might suddenly fit into this!

thehoward said:

Hi, just got back home from a trip, so sorry for late reply. First, I don't know what the cause of my TN2 is, though I suspect it is a virus!. But I can't rule out a dental cause. I've known for years that my lower and upper jaw are not aligned correctly. The dentist didn't see it, BUT THE HYGIENIST DID! At which point he opined that it could not be the source of my pain. When the tooth pain started (it was in an upper molar and also in the one directly below), my regular dentist was not available, so I saw someone else. The grinding is painless, the simplest thing, takes a few minutes -- until the teeth fully engage like they are supposed to, as opposed to a corner hitting first. He didn't even charge me for the work -- because my simple description provided him "the clue" and he was happy for picking it up. I have no idea if this small problem could be the cause of TN1 when the patient doesn't have TN2. All he could say was that "anything" could trigger pain, and that what I told him helped him pinpoint the trigger. I can't argue with the results. When my regular dentist heard (from my wife) that the guy he sent me to diagnosed me with TN, he said that it was impossible. He is no longer my regular dentist. Anyway, we would get into political arguments with me in the chair and his instruments in my mouth, which put me at a disadvantage. No great loss.

Woman with the electric teeth said:

Hi Howard, believe it or not I've suspected a bite connection from the very beginning, but no-one else thinks it's valid. When I very first went to the dentist I took my nightguard with me (this was before we learned it was TN) and showed her the fact that there is a big hole ground away in it right over my 'sensitive' zone. I know grinding can cause gum recession and tooth sensitivity, but she just said 'That's interesting' and paid it no more heed. I also told my doctor, but he's not interested either.

I actually know my bite is off because some years ago my incisors stopped meeting on that same side. I told my dentist at the time and I think he put it down to my teeth moving about due to gaps in molars (practically no molars on the right side- again the same side). To me it all seems kind of cumulative and suspicious, but no-one else seems to think so, so I ran out of people to ask. If they think it's not important I assume it's not important.

What is the tooth grinding thing they did for you? It sounds a bit lethal! I have dental phobia, which complicates the issue, as I'm not good with dental procedures!

thehoward said:

Darn it, my post disappeared. Look, there's a chance it comes from a bad bite and you need some simple tooth grinding. I have had TN 2 for decades, but came down with toothache plus sharp head pains on the same side. I almost went to the ER. Dentist didn't know I had TN2 (it's the first time I visited him), yet he diagnosed me with TN1, ground my teeth to correct the bite, and sent me home convinced he was a jerk. The pains, tooth and head, vanished that evening. I remain a TN2er, unfortunately, and now appreciative of what you Typicals have to live with.

Hi Nomad, thanks for the product name, but unfortunately it's Canadian and doesn't appear to be available here in the UK. I mentioned Lidocaine gel to my GP today and he's going to look it up for me and see if he can track something down. God only knows what I'll get though - probably teething gel!

Nomad said:

My apologies as I'm rushing and did not read all the replies. No doubt meds will likely be needed for severe pain.

But I just heard from someone that a product that you can buy at Amazon has been helpful for this. It's called:

Blistex Kanka Soft Brush Tooth/Mouth Pain Gel, Professional Strength

It is lidocaine that is on a brush that can be used within the mouth

Might be worth a try

Only just seen this conversation… Jamie my story is just like yours… Bad tooth pain (or so I thought) two root canals in two teeth, one of these was even redone again! Then finally two teeth extracted. Now left with pain, as if tooth is still there. This was over the past 7 years. Finally saw my GP who immediately diagnosed TN but the damage is all now done and am left to look forward to taking pills for the rest of my life to try to get the pain under control. I’m still struggling to accept all of this. It all sounds so crazy - in fact many times through this I thought I was going crazy :frowning:

I can’t get to a computer at the moment, using my phone. BUT a discussiOn about how many of us went to the dentist and ended up with lifetime nerve pain might be warranted. Mine is like that…was fine going to the dentist, had no pain, but ended up with this fiasco. Although mine is largely in my ear and face. Filled with neg feelings that I try hard to cope with

If you have classic Trigeminal Neuralgia though, it isn't caused by dental treatment, it's caused by "vascular compression" generally. However, perhaps ATN is a different ball game? I think what causes a lot of this dental connection in people's heads is because so much of the pain is felt in the teeth, like mine. I wonder sometimes if people who have had the disease a long time simply forget that the pain came first, before they had any dental treatment. In my case, for example, I went for dental treatment, BECAUSE of the pain. It certainly never caused it, since I'd been nowhere near a dentist for at least two years before it happened. Right now, if I didn't have doctors telling me otherwise, I'd find it VERY hard to believe it wasn't a dental problem. I still worry that it is, on a daily basis!

I know I read somewhere (on the UK TN association site perhaps?) that it's not caused by dental treatment. Certainly I know no connection has ever been scientifically proven, but like I say I think this is maybe for classic TN, like I have. Atypical might be a completely different ball game...

Nomad said:

I can't get to a computer at the moment, using my phone. BUT a discussiOn about how many of us went to the dentist and ended up with lifetime nerve pain might be warranted. Mine is like that...was fine going to the dentist, had no pain, but ended up with this fiasco. Although mine is largely in my ear and face. Filled with neg feelings that I try hard to cope with