Anyone had THIS happen?

1

I have had TN and fibro for many years…my TN does occasionally make my face (whichever side is effected swell a bit at times). Anyhow, I woke up this morning with a HUGE knot basically up under my cheekbone…swollen face and horrid pain…I am seriously not sure if it is my TN or fibro! Anyone have experience with this? I know I am in flare, so it is possible it is my TN (atypical bilateral type ll), but is it possible that this is fibro in my face? I have not ever had it in my face previously. I sure hope this makes a lick of sense, as I am typing it with one eye closed and with only one hand, as the other I am massaging that darn knot! Yikes.

2

I too have both but do not have those symptoms. I do have Atypical TN, I hope you feel better soon.

3

Thank you. I remembered that I will occasionally get knots under my chin during a TN flare…that feel the same…this not does not feel like a fibro one, so I am thinking TN…I am in full flare…upsetting after several months of minor flares and remission cycles…but, I will battle it back! Thanks for the kindness, md…

4

Hi Saber
I haven’t had a knot like that but I do get knots in other areas. When I’m in a flare I get Shaitsu massage, it targets the CNS, and is the one true complimentary care regimen that works wonders for me. I even get waves of bliss during one of these treatments and that just makes everything better, even the TN pain.
Bellalarke

5

Ah yes, Bellalarke, we are again on the same page…I recently left Shaitsu for traditional Thai (stretching, massaging, walking, etc.), it has helped me tremendously! I have an appt. this week, yippee!!

Knots are awful, thank goodness the facial one has almost gone away…

Saber

6

Hope the knots in your face are doing better. I have been getting what I call “rocks” for years from fibro. Just wake up with them, mostly on back and hips but many years ago when I had trouble with TMJ I had them in jaw area too. Hope you are doing well and are rock free!

7

I’m having this exact symptom currently. Knot right in the cheek. I have ATN and fibromyalgia as well.