It would be so nice if we could connect and support each other. :)
~ Vicki
It would be so nice if we could connect and support each other. :)
~ Vicki
Vicki, I can send out a targeted announcement of your interest to others in Washington State and Southern Vancouver, if you'd like. Send me an email point of contact and a phone number by private message, if you are interested...
Regards, Red
Vicki: Yes, I am from the Seattle Area and yes, I am willing to work on a support group. I had my first symptom less than a month ago and I am pretty distressed to think I may need to live with this the rest of my life. And I have experience with other things and support and know it can be invaluable. Anne
Hi: Replying about Seattle Area. My name is Anne Tonks. I had trigeminal neuralgia because of a benign brain tumor which I had mostly removed in January. My face is still numb on the right side, but I am pain free at the moment (except for the numb pain which is irritating but very liveable) I think over months the numbness will minimize--it is already happening, but slowly. I intend to continue in this group as I have learned a lot. I live on Lower Queen Anne and would be happy to connect for a meeting or a video conference. I am at ■■■■■■■■■■■■■■■■■■■. 206 708 0796. I have a place to meet and some parking at my large condo or we could meet elsewhere. I also can do free video on SKYPE if that is more convenient. Please use this contact information in anyway that works for you. I am on both linked In and Facebook, but I don't check them every day. There is a good article in Discover Magazine this month (april) on microvascular decompression.
Have you checked on the TNA / Facial Pain website -? They have groups listed for many many places!
Hi KC Dancer: Good Question. But, Actually I am the rep for Seattle Area for TNA/Facial Pain Website and I know someone else who has also volunteered for that position. It would be good to get started. Anne
Hi! I know this is an older post - did anything come together with a Seattle support group? Just found out we will be moving to Seattle next summer. I am really excited!
If folks are interested, I can do a pull on the LWTN database and set up a general mailing for people in the Seattle metropolitan area. Your call, of course.
Regards, Red
Hi folks, I would really love to be part of a Seattle support group. I know this discussion thread is fairly old, but I'm hoping there is still interest. Let me know!
My offer immediately above is still good. If you would like me to do a direct email alert, then send me an email address at ■■■■■■■■■■■■■■■■■■■
Regards, Red
Hi all, I am moving back to my parents house, just north of Seattle, I was wondering if an email had gone out back in February and if anything came of it. Hope to hear soon.