Anyone at Mayo?

1

I just found out I have to drive 9 hours in Oct.

To Rochester MN Mayo

for a possible rare autoimmune disease

Once I get past neurology --- assuming I pass the eval for MVD / type I first procedure / diagnosis only 10 months.....

Any ancetodal stories of good docs for MVD

Thanks....

Still also searching midwest avenues - do not have $$ to fly

2

I'll do some sniffing around in Kansas City, Dancer. Don't know anyone there personally, but might be able to find a patient from that area who does.

Regards, Red

3

Great - there is not a local group meeting till Sept.

Thanks

4

In Kansas City, Kansas, the TNA Support Group is run by
Fred DeMoro
816-■■■■■■■■ x11
email ■■■■■■■■■■■■■■■■.

Although the group may not be meeting soon, as a group leader who has attended other meetings, he may be aware of a patient who has had good outcomes with a local surgeon.

In Wichita, a telephone contact can be found in Vicki Gordon
(316) ■■■■■■■■
■■■■■■■■■■■■■■■.

In St. Louis Missouri, David Voracek
(314) ■■■■■■■■
■■■■■■■■■■■■■■■■■

Also in St. Louis, telephone support is provided by

Mary Kate Jensen
(314) ■■■■■■■■
■■■■■■■■■■■■■■■■■

and

Roxanne Crawley
(314) ■■■■■■■■
■■■■■■■■■■■■■■■■■■■■■■

Any of these people may have contacts with a local neurosurgeon who does MVD, or know of another patient who has had a successful outcome.

Regards and best,

Red

5


OHHHH THANIKS !!!!


Richard A. "Red" Lawhern said:

In Kansas City, Kansas, the TNA Support Group is run by
Fred DeMoro
816-231-9191 x11
email fedm@hotmail.com.

Although the group may not be meeting soon, as a group leader who has attended other meetings, he may be aware of a patient who has had good outcomes with a local surgeon.

In Wichita, a telephone contact can be found in Vicki Gordon
(316) 788-3576
kuvicki@aol.com.

In St. Louis Missouri, David Voracek
(314) 771-6211
UCityDave@aol.com

Also in St. Louis, telephone support is provided by

Mary Kate Jensen
(314) 968-2092
jensensnt@aol.com

and

Roxanne Crawley
(314) 921-5769
rbcatdoa@sbcglobal.net

Any of these people may have contacts with a local neurosurgeon who does MVD, or know of another patient who has had a successful outcome.

Regards and best,

Red

6

The first two st louis contact emails came back not usable — i will try phones for them tomorrow

Kc Dancer Kc said:


OHHHH THANIKS !!!!


Richard A. "Red" Lawhern said:

In Kansas City, Kansas, the TNA Support Group is run by
Fred DeMoro
816-231-9191 x11
email fedm@hotmail.com.

Although the group may not be meeting soon, as a group leader who has attended other meetings, he may be aware of a patient who has had good outcomes with a local surgeon.

In Wichita, a telephone contact can be found in Vicki Gordon
(316) 788-3576
kuvicki@aol.com.

In St. Louis Missouri, David Voracek
(314) 771-6211
UCityDave@aol.com

Also in St. Louis, telephone support is provided by

Mary Kate Jensen
(314) 968-2092
jensensnt@aol.com

and

Roxanne Crawley
(314) 921-5769
rbcatdoa@sbcglobal.net

Any of these people may have contacts with a local neurosurgeon who does MVD, or know of another patient who has had a successful outcome.

Regards and best,

Red

7

I’ll feed back any further bounces you get by email or by phone, to the TN Association where these contacts were listed. Regards, Red