best place to get a diagnoses of this issue. what do you think of premiere groups Im not delighted with my internist, neuro, etc. in this area.
It will take a while to get an appt at shands, other option..
Theres a dr. ducic who operates on occipital neurolgia at georgetown for those interested.
Where is that? I am near chicago and my doctors might as well be mcdonalds cashiers. They do not seem to have the slightest clue on this issue. Mine keeps trying everything else but tn medicine. The only reason in even getting tegritol which by the way is not working is from my nuerologist who also does not seem to know much either. Although both are really quik about surgery talk. This is very frustrating I thought most docs would want to try all other options before even considering risking potentially more issues from surgery complications. The emergency rooms aren’t much help either. I don’t even bother with that anymore.
The closest practitioners I personally know of relative to Chicago, who are intimately familiar with TN medication would be at the Mayfield Clinic in Cincinnati. However, the TN Association maintains a knowledge base of physicians. Almost all of the following are neurosurgeons. But you should be able to call their offices and ask for a recommendation on neurologists who understand TN.
Joshua M. Rosenow, MD, Chicago |
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There are also three support group contacts listed in Chicago, and this is also a place to start. Call or email them and ask if any of their members have had a successful relationship with a Chicago area neurologist.
Chicago Area
Betty Luckett
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Rochelle Levin
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John and Aimee Kerkemeyer
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From the above list I interviewed three (3), Rosenow,Rosseau and Bovis. I selected Bovis and he operated on me May 17th,2011. I had an eperdemoid tumor pressing on the Trigeminal and he successfully eliminated the pain and removed a large portion of the tumor.He is IMO conservative, he does not take chances with other peoples lives. He left some in there but Im fine with it if I never get pain again. Did not need him to risk my hearing and paralysis on a "hunch".
Rosseau? provided the wrong advice. With tumors the approach based on the Mayo Clinic studies is operation not radiation. If I needed radiation I would select Gamma over Cyber. IMO she was wrong on both accounts.
Rosenow? Talented. Super Smart. Cocky. That is the reason I went with Dr. Bovis. Rosenow's attitude was a little too cavalier for me regarding brain surgery. His quote when question if the TN returned, " Oh...we'll just operate and take it out"....He was 100% right, but the vibe did not sit well with me. He is at NW Memorial a FANTASTIC facility. I would definitely consider him and they have another on staff that specilizes in TN. I would definitely interview someone at NW Memorial.
Bovis? I picked him and things have worked out beatifully. Enough said.
Good luck and GOD bless, Jerry Parker
Thanks for the info red. I am starting my new jouney as of Monday. I have to get rid of these doctors before they make this any worse for me. When you are not getting any better and a doc says he is not willing to do anything else about it it is time to let him go. I am just going to have to deal with this on my own till then. Its very scary but I do not trust what they are doing to me and the way I am being treated like a drug addict. He is acting like these meds should have worked and since they have not I must be lying to him. I am not happy about taking any meds at all but I would rather search for different med combos before cosidering surgery
After having a brain emg and neck with not much showing, assuming I understand it. Another 3 days in bed, but a lot cramping and cervical spine pain. Im a nerve root map and it appears I am still short of tissue, Im filled with fluid and just about every area hurts. The cramping is waking me at night and every place that has scar tissue hurts. Miam suggested psychiatry. but nothing for pain. how many of us are bed ridden and in such chronic pain. other than reds suggestions are all i have. its hard to keep going. where would you get the best advice. you cant write or see everyone.
for chronic inflamation has anyone used cortisone.
duvic is in washington…
elaine48 said:
Theres a dr. ducic who operates on occipital neurolgia at georgetown for those interested.
Thanks for the info jerry I apprecite you taking time from your experience hope you are still doing well
Jerry Parker said:
From the above list I interviewed three (3), Rosenow,Rosseau and Bovis. I selected Bovis and he operated on me May 17th,2011. I had an eperdemoid tumor pressing on the Trigeminal and he successfully eliminated the pain and removed a large portion of the tumor.He is IMO conservative, he does not take chances with other peoples lives. He left some in there but Im fine with it if I never get pain again. Did not need him to risk my hearing and paralysis on a “hunch”.
Rosseau? provided the wrong advice. With tumors the approach based on the Mayo Clinic studies is operation not radiation. If I needed radiation I would select Gamma over Cyber. IMO she was wrong on both accounts.
Rosenow? Talented. Super Smart. Cocky. That is the reason I went with Dr. Bovis. Rosenow’s attitude was a little too cavalier for me regarding brain surgery. His quote when question if the TN returned, " Oh…we’ll just operate and take it out"…He was 100% right, but the vibe did not sit well with me. He is at NW Memorial a FANTASTIC facility. I would definitely consider him and they have another on staff that specilizes in TN. I would definitely interview someone at NW Memorial.
Bovis? I picked him and things have worked out beatifully. Enough said.
Good luck and GOD bless, Jerry Parker
Red,
Do you know of any MD's in Delton, Michigan or nearby that are involved in the treatment for TN.
Kim
Richard A. "Red" Lawhern said:
The closest practitioners I personally know of relative to Chicago, who are intimately familiar with TN medication would be at the Mayfield Clinic in Cincinnati. However, the TN Association maintains a knowledge base of physicians. Almost all of the following are neurosurgeons. But you should be able to call their offices and ask for a recommendation on neurologists who understand TN.
Joshua M. Rosenow, MD, Chicago
Gail Rosseau, MD, Chicago
Richard W. Byrne, MD, Chicago
Lorenzo F. Munoz, MD, Chicago
* Konstantin Slavin, MD, Elk Grove Village
Jonathan S. Citow, MD, Libertyville
Douglas E. Anderson, MD, Maywood George K. Bovis, MD, Park Ridge
Patrick Elwood, MD, Peoria
Jeffrey Klopfenstein, MD, Peoria
Kim, the Chairman of the TNA Medical Advisory Board works in Trenton
Kenneth F. Casey, MD, National Chairman, MAB
Chairman, Department of Neurological Surgery
Oakwood Southshore Hospital
5452 Fort Street, 2nd Floor
Trenton, MI
The next closest that I am aware of is
Bruce E. Pollock, MD
Professor of Neurological Surgery
Mayo Clinic
Rochester, MN
Other physician referrals may be available through the TNA support group in Detroit:
Tim Guith (1-248-643-9131; 1-248-227-8064; tagdude@webtv.net)
Lynn Ruppe (1-313-882-8769; LRRuppe@aol.com)
Regards, Red
Red..... Bruce Pollock is a top researcher as well. It was his study from Mayo that convinced me to precede with with surgery. If I recall correctly, you can call Mayo, explain your situation and overnite your MRI's. They will review them and discuss whether they can help you or not. Now I had a tumor causing the TN so my situation is different than most TN patients.
Red, Thanks for all your support to this community. To be able to assist people in great hardship who are suffering the most unbearable of pains is a great gift. Thanks.
JP
Richard A. "Red" Lawhern said:
Kim, the Chairman of the TNA Medical Advisory Board works in Trenton
Kenneth F. Casey, MD, National Chairman, MAB
Chairman, Department of Neurological Surgery
Oakwood Southshore Hospital
5452 Fort Street, 2nd Floor
Trenton, MIThe next closest that I am aware of is
Bruce E. Pollock, MD
Professor of Neurological Surgery
Mayo Clinic
Rochester, MN
Other physician referrals may be available through the TNA support group in Detroit:
Tim Guith (1-248-643-9131; 1-248-227-8064; tagdude@webtv.net)
Lynn Ruppe (1-313-882-8769; LRRuppe@aol.com)
Regards, Red
i was thinking of goig to mayo, but if nothing shows up???
i could email pollack.
the other issue is structural problems. this includes the pinched nerves and spine.
Richard A. "Red" Lawhern said:
Kim, the Chairman of the TNA Medical Advisory Board works in Trenton
Kenneth F. Casey, MD, National Chairman, MAB
Chairman, Department of Neurological Surgery
Oakwood Southshore Hospital
5452 Fort Street, 2nd Floor
Trenton, MIThe next closest that I am aware of is
Bruce E. Pollock, MD
Professor of Neurological Surgery
Mayo Clinic
Rochester, MN
Other physician referrals may be available through the TNA support group in Detroit:
Tim Guith (1-248-643-9131; 1-248-227-8064; tagdude@webtv.net)
Lynn Ruppe (1-313-882-8769; LRRuppe@aol.com)
Regards, Red
This is why Red is my TN HERO. He has so much knowledge and he can point you in the right direction. He is fantastic. I am so happy we have him.