Thank you. I've been checking them out.
Stephanie Rudin said:
There are a few threads on MAD surgery. Try searching MVD in the discussions and I'm sure you'll find plenty of responses.
Yeah the pain fully returned 8 weeks after MVD. At 6 weeks I started to feel slight pain then it increased significantly back to full force.
Mary said:
I have Type 2 also. You said it lasted 8 weeks. Did youget a lesser degree of discomfort after the 8 weeks?
Shindig said:I had an MVD with type 2 pain which was low odds to begin with. It only helped for 8 weeks. If you have type 1 then your odds are much better.
It's brain surgery, has risks, but I'd do it again.
This was mine:
which was awesome while it was showing....
The idea of having life pain free and then it coming back almost makes me sick. I’ve had ATN since 2000. I’ve been blessed until recently to have a very slow progression. My first neuro visit is scheduled for July. I have such a good PCP that I’m apprehensive of seeing a new doc, but the rapid progression supports taking this next step. I find all of you who have surgery to be very brave. Some of the possible side effects from the surgery would eliminate my ability to do my job, so I have not considered surgery yet. However, I continue to read all the discussions on them because I feel it is the way I must go very soon. Mary, I hope you are pain free very soon!
Hey Flakakara, I take it you aren't able to try a tricyclic antidepressant?
The first med I tried was gabapentin and it made me a zombie, I took 2700mg/day. It only helped the pain for a few days while adjusting to a higher dose, then it would quickly fade.
I went to a new neuro who gave me nortriptyline + oxcarbazapine instead of gabapentin and it worked amazingly well for a few months. To this day, nortriptyline has helped more than oxycontin, oxcarbazapine, neurontin, etc. for me...
My main problem is the ATN affects my eye, which becomes debilitating if I don't get it under control. When I move my eye left/right I get an ice pick stabbing pain behind it that makes it water. The antidepressants helped more than anything thus far....
Shindig: I haven’t tried tricyclic antidepressants. Until recently the progression was being held at bay by what I was doing (or at least slower progression than expected).