Angry that Doctors Want to Blame Stress Illness

I just need to have someone understand as I know several of you previously had difficulty with doctors not taking your pain seriously or suggesting you see a mental health professional. I have now been through 4 different neurologists trying to find someone that had ideas to help me. I was never told my diagnosis was TN but in the notes TN and Atypical Facial Pain were listed as my diagnosis. The first neurologist kept testing me until she gave up on helping and sent me to a pain management specialist, which did not help at all. The second neurologist tried multiple medications and treatments and finally advised me to try a different hospital because they were not able to help. The third doctor said he could not help because I had multiple problems with neuralgia and he did not feel treating the TN would help all of the pain. The last doctor agreed that I had some type of TN or extreme facial nerve disorder since I had an episode in his office and he could see my face swell and turn red from the pain. Instead of helping, he suggested I see a mental health counselor because it could all be coming from unresolved past experiences and diagnosed stress illness! What a NUT JOB! I think he's the one that needs mental help! I had to explain to him that before all this pain took control of my life I used to be a mental health counselor. I think my multiple degrees would prove more useful in determining "stress illness" then his degree in neurology! I'm just sick of doctors that do not understand! They think just because it does not show up on some CT scan or MRI it does not exist. Why would anyone make up this kind of pain? I realize stress does many damaging things to the body but I have physical symptoms that show up when I am in pain! I have swelling, redness, drooping of my eye and mouth and other physical symptoms that are not typical of stress illness but are typical of ATN or ATFP.

How many of you know how it feels to get one of these idiots?

God bless you all!

Wendy

You might be surprised by how many members have had to contend with a general practitioner who leaped to the conclusion that because they didn't understand a patient's symptoms, the problem must be "mental" in origin. I've talked with any number of folks who found themselves in this situation.

We can acknowledge that stress and emotional crisis may increase personal sensitivity and aggravate pain, even if we don't buy into the mythology of stress as "cause" of pain. Stress and anxiety control can be a useful adjunct to a program of medical therapy, exercise, and (perhaps) low inflammation diet. But that said, there may still be incidents where a pain patient may find it appropriate and necessary to tell a doctor "you're full of it", after being written off as a head case.

For anyone who is dealing with issues of medical treatment, there is a book which may be useful in petitioning to get psychosomatic diagnoses removed from your medical records: "Authors of Our Own Misfortune? - Problems with Psychogenic Explanations for Physical Disease", by sociologist Angela Kennedy. It's available on Amazon at

http://www.amazon.com/Authors-our-own-misfortune-explanations/dp/1479253952/

========================================

Fair disclosure: I wrote the following review for the book:

Angela Kennedy has assembled a major body of well-referenced research in "Authors of our own Misfortune? The Problems With Psychogenic Explanations for Physical Illnesses". The book is difficult in two ways. Kennedy writes as a social scientist and researcher. Her intended audience is primarily medical doctors, psychiatrists and psychologists who assign diagnoses of psychosomatic disorder to patients seen in their practices. Non-professional readers may find her long paragraphs and 8-line sentences to be hard slogging. In language and style, the book is nearly inaccessible to any but the most persistent of college educated non-physician readers.

This being said, a second and deeper sense of difficulty applies in this book. Kennedy directly challenges both medical doctors and mental health professionals to examine and revise their assumptions about a range of important issues pertaining to so-called "psychogenic" medical symptoms. These are by definition, symptoms of physical disorder or disease that are presumed to be "caused" by the mental state or thinking of the patient. The term "assumed" is highly central here. Kennedy is also challenging professional doctors who may be in emotional denial that what they practice in "psychosomatic" medicine is a dangerous and destructive mythology rather than a consistent or constructive healing art.

Kennedy effectively demolishes an entire branch of current psychiatric practice as codified in the 5th and previous editions of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), published by the American Psychiatric Association. She demonstrates compellingly that there is no basis in science for such diagnoses as "Somatic Symptom Disorder", "Functional Neurological Symptom Disorder (Conversion Disorder)", "Hypochondriasis," or "Munchhausen Syndrome by Proxy". She also sets forth evidence that several presently controversial medical disorders are far better explained as poorly understood medical illness, than they are treated as outgrowths of any emotional or psychogenic process. These medical disorders include Fibromyalgia, Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS), and Irritable Bowel Syndrome (IBS).

Kennedy demonstrates predictable and unnecessary harms that grow from misdiagnosing medical disorders as mental disease entities. Chief among these is the denial of effective medical assessment and treatment to millions of people who are instead written off as "head cases" and then disregarded as reliable reporters of their own medical symptoms and conditions. The careless or frustrated discharge of "difficult" patients who have subtle or unusual medical problems can and already has led to patient deaths. Likewise, among mental health professionals charged with caring for psychosomatic patients, there are no truly effective modalities of treatment. None.

If you are a mental health professional, then you should read this book and ask yourself how many of your patients have been harmed by the fallacies it reveals. If you are a patient who has been referred by a medical doctor for mental health evaluation, or who has been diagnosed with so-called psychogenic symptoms, then you should buy this book and give it to the practitioner who diagnosed you. You may even want to add a note on the flyleaf: "if you can't do better than this, then it's time you looked for an honest line of work!"


Don’t ever let anyone tell you that. After failed attempts with the wrong diagnosis a Dr told me he felt I had " underlying" depression anxiety issues. Screw you . who the hell wouldn’t be depressed in pain everyday and no one will listen or help. YOUR PAIN IS REAL

Hi, I have dealt with so much of what you are saying. After the third failed surgery my neurosurgeon finally said that it would be a waste of time to have a follow up appt. And now I am in more pain than before. I am finally at a loss. I don't understand they're thinking.

Keep fighting,

Christine



Richard A. "Red" Lawhern said:

You might be surprised by how many members have had to contend with a general practitioner who leaped to the conclusion that because they didn't understand a patient's symptoms, the problem must be "mental" in origin. I've talked with any number of folks who found themselves in this situation.

We can acknowledge that stress and emotional crisis may increase personal sensitivity and aggravate pain, even if we don't buy into the mythology of stress as "cause" of pain. Stress and anxiety control can be a useful adjunct to a program of medical therapy, exercise, and (perhaps) low inflammation diet. But that said, there may still be incidents where a pain patient may find it appropriate and necessary to tell a doctor "you're full of it", after being written off as a head case.

For anyone who is dealing with issues of medical treatment, there is a book which may be useful in petitioning to get psychosomatic diagnoses removed from your medical records: "Authors of Our Own Misfortune? - Problems with Psychogenic Explanations for Physical Disease", by sociologist Angela Kennedy. It's available on Amazon at

http://www.amazon.com/Authors-our-own-misfortune-explanations/dp/14...

========================================

Fair disclosure: I wrote the following review for the book:

Angela Kennedy has assembled a major body of well-referenced research in "Authors of our own Misfortune? The Problems With Psychogenic Explanations for Physical Illnesses". The book is difficult in two ways. Kennedy writes as a social scientist and researcher. Her intended audience is primarily medical doctors, psychiatrists and psychologists who assign diagnoses of psychosomatic disorder to patients seen in their practices. Non-professional readers may find her long paragraphs and 8-line sentences to be hard slogging. In language and style, the book is nearly inaccessible to any but the most persistent of college educated non-physician readers.

This being said, a second and deeper sense of difficulty applies in this book. Kennedy directly challenges both medical doctors and mental health professionals to examine and revise their assumptions about a range of important issues pertaining to so-called "psychogenic" medical symptoms. These are by definition, symptoms of physical disorder or disease that are presumed to be "caused" by the mental state or thinking of the patient. The term "assumed" is highly central here. Kennedy is also challenging professional doctors who may be in emotional denial that what they practice in "psychosomatic" medicine is a dangerous and destructive mythology rather than a consistent or constructive healing art.

Kennedy effectively demolishes an entire branch of current psychiatric practice as codified in the 5th and previous editions of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), published by the American Psychiatric Association. She demonstrates compellingly that there is no basis in science for such diagnoses as "Somatic Symptom Disorder", "Functional Neurological Symptom Disorder (Conversion Disorder)", "Hypochondriasis," or "Munchhausen Syndrome by Proxy". She also sets forth evidence that several presently controversial medical disorders are far better explained as poorly understood medical illness, than they are treated as outgrowths of any emotional or psychogenic process. These medical disorders include Fibromyalgia, Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS), and Irritable Bowel Syndrome (IBS).

Kennedy demonstrates predictable and unnecessary harms that grow from misdiagnosing medical disorders as mental disease entities. Chief among these is the denial of effective medical assessment and treatment to millions of people who are instead written off as "head cases" and then disregarded as reliable reporters of their own medical symptoms and conditions. The careless or frustrated discharge of "difficult" patients who have subtle or unusual medical problems can and already has led to patient deaths. Likewise, among mental health professionals charged with caring for psychosomatic patients, there are no truly effective modalities of treatment. None.

If you are a mental health professional, then you should read this book and ask yourself how many of your patients have been harmed by the fallacies it reveals. If you are a patient who has been referred by a medical doctor for mental health evaluation, or who has been diagnosed with so-called psychogenic symptoms, then you should buy this book and give it to the practitioner who diagnosed you. You may even want to add a note on the flyleaf: "if you can't do better than this, then it's time you looked for an honest line of work!"


Thanks so much for your reply Red! I agree that so many people with these illnesses need to be heard and I am so thankful to have this website to talk to others with similar issues. I will keep standing up for my rights and I will keep searching for a doctor that listens and tries to help!



Jennifer Muir said:

Don't ever let anyone tell you that. After failed attempts with the wrong diagnosis a Dr told me he felt I had " underlying" depression anxiety issues. Screw you . who the hell wouldn't be depressed in pain everyday and no one will listen or help. YOUR PAIN IS REAL
Thanks for your reply Jennifer. I am now seeing another neurologist that agrees that my pain is real and wants to continue to try various combinations of medications. If they do not work he will talk to neurosurgery and see if they can help. Apparently it is so unusual to have trigeminal neuralgia, glossppharyngeal neuralgia and fibromyalgia that they kept thinking it was another disease or psychosomatic. I would have to be in that 2 % category! It's ok at least they are listening now!

Thank you Christine for your encouragement! I am sorry that you have to deal with so many doctors that just don't understand. I know how you feel! Keep hanging in there and looking for new doctors that might listen and who actually have a brain!



christine said:

Hi, I have dealt with so much of what you are saying. After the third failed surgery my neurosurgeon finally said that it would be a waste of time to have a follow up appt. And now I am in more pain than before. I am finally at a loss. I don't understand they're thinking.

Keep fighting,

Christine