Tennessee?
Social network(s) and news, they have nothing.
Please, let 'Reality TV' come to our door. WE have paid for the microphone.
I hear ya! I don’t like trying to describe this thing to people, no one has heard of it unless they have it. When I try to explain it, most people either look at me funny or they start telling me how they know someone who has that too, but it is called TMJ. Really? Like I don’t know what this thing is called… this monster that has caused me years of misery until I finally begged to have a hole drilled in my skull.
My favorite is when someone says “yeah, I know about that…I have a bad knee…”. ok buddy - let me get an extension cord…you put this end in your mouth…I’ll go plug it in…
haha
Or how about when they say but you don’t look sick.
and I also have Chronic Navel Fuzz, a condition that…
I’m still working with Windows 5.1! Actually, XP-Home, 6 year old 'puter I’m just learning to use.?
How about some FUN! ‘FarmPharmVille’…“you can google it”
The times people say to me, how well you look, you have a lovely colour. One friend always thinks fresh air is the answer to all ails. Nothing beats the wind on your face. Then a week of intense pain is the reward. Just a day of our condition is what I wish on some people. Ones electric was going off for 3 hours which was terrible as she had washing to do. Hope you have a good day Margaret
Todd Friesen said:
My favorite is when someone says “yeah, I know about that…I have a bad knee…”. ok buddy - let me get an extension cord…you put this end in your mouth…I’ll go plug it in…
haha
LMAO, let em 'ave it!!! Electricute em and let them see how it really feels.!!!
xxx
Todd Friesen said:
My favorite is when someone says "yeah, I know about that...I have a bad knee...". ok buddy - let me get an extension cord...you put this end in your mouth...I'll go plug it in...
haha
Bring on the Pharmville!!! I would be the first to sign up for that 
xxx
Bob Snodgrass said:
and I also have Chronic Navel Fuzz, a condition that…
I’m still working with Windows 5.1! Actually, XP-Home, 6 year old 'puter I’m just learning to use.?
How about some FUN! ‘FarmPharmVille’…“you can google it”
Or how about when you are talking to someone and they are complaining about the fact they they stubbed their toe and it is so painful everytime they walk and it is sooooooooo horrible they can’t do anything and they took a week off work to let it heal!!!
hahahahah…while you are sitting their feeling like someone is stabbing you in the face!!!
Feeling the most painful condition known to man and all you want to do is hit the person across the face!!!
Oh you look great, and i bet you are feeling all better cuz you aren’t crying for the 1st time in 2 months.
As I try and tell people…a smile does not mean everything is ok. It just stinks. I wish that everyone could just have TN for an hour…and then let them talk. After a loved one hurt their hand (not serious, like bruising) I took it and twisted it, and he said ow! Then I said go to class like that, work like that, try and have a life while something hurts. I am sorry if anyone thinks that I am rude or immature…it just makes me so frustrated that we have to deal with “the suicide disease” and people are so arrogant. UGH. It makes me so angry. I have to bite my tongue all too often.
I can’t stand when people insist on putting a facebook “I have a headache” or “ahh a cold” GET OVER IT. We would all trade that for what we have. People just have no concept. My sister has stood up for me often…she is a senior in high school and if she has classmates make comments of a headache or such…she says my sister would love just that, or something along those lines.
I was on Inside Edition a few years ago, but it still didn’t get through to people what it was. I wish we could seriously get a reality TV show. I mean, come on with all the garbage that there is on TV! When peoples lives are consumed of getting their nails done, tanning and gossiping and be immature…and we are fascinated by that? What about the fact that all of us have found the strength deep inside to keep going and be alive! We get out of bed everyday, we go to countless doctors, we keep going. It just makes no sense.
…and NASA helped the Chilean miners. NASA technologies, to my limited knowledge, must be applied here, http://www.livingwithtn.org
I ‘Follow’ NASA on Twitter! What happens in 70 days? “You Can Google IT”
My ‘Friends’ are here, bob
I’m guessing there are no astronauts or fighter pilots with TN… could you imagine having this AND dealing with the kind of G-force those folks endure? I think my head would explode! I don’t even want to get on a commercial flight.
Bob Snodgrass said:
…and NASA helped the Chilean miners. NASA technologies, to my limited knowledge, must be applied here, http://www.livingwithtn.org
I ‘Follow’ NASA on Twitter! What happens in 70 days? “You Can Google IT”
My ‘Friends’ are here, bob
I love the idea of a reality TV show
Ally Castellano said:
As I try and tell people…a smile does not mean everything is ok. It just stinks. I wish that everyone could just have TN for an hour…and then let them talk. After a loved one hurt their hand (not serious, like bruising) I took it and twisted it, and he said ow! Then I said go to class like that, work like that, try and have a life while something hurts. I am sorry if anyone thinks that I am rude or immature…it just makes me so frustrated that we have to deal with “the suicide disease” and people are so arrogant. UGH. It makes me so angry. I have to bite my tongue all too often.
I can’t stand when people insist on putting a facebook “I have a headache” or “ahh a cold” GET OVER IT. We would all trade that for what we have. People just have no concept. My sister has stood up for me often…she is a senior in high school and if she has classmates make comments of a headache or such…she says my sister would love just that, or something along those lines.
I was on Inside Edition a few years ago, but it still didn’t get through to people what it was. I wish we could seriously get a reality TV show. I mean, come on with all the garbage that there is on TV! When peoples lives are consumed of getting their nails done, tanning and gossiping and be immature…and we are fascinated by that? What about the fact that all of us have found the strength deep inside to keep going and be alive! We get out of bed everyday, we go to countless doctors, we keep going. It just makes no sense.
Reality Tv, if they had seen me last night, in bed going mad with pain at 7pm. Took liquid morphine I just wanted to die. Don’t think they would have shown me to the world at large. Still in pain but not as bad. Is this life. Margaret
Rick Smith said:
I love the idea of a reality TV show
Ally Castellano said:As I try and tell people…a smile does not mean everything is ok. It just stinks. I wish that everyone could just have TN for an hour…and then let them talk. After a loved one hurt their hand (not serious, like bruising) I took it and twisted it, and he said ow! Then I said go to class like that, work like that, try and have a life while something hurts. I am sorry if anyone thinks that I am rude or immature…it just makes me so frustrated that we have to deal with “the suicide disease” and people are so arrogant. UGH. It makes me so angry. I have to bite my tongue all too often.
I can’t stand when people insist on putting a facebook “I have a headache” or “ahh a cold” GET OVER IT. We would all trade that for what we have. People just have no concept. My sister has stood up for me often…she is a senior in high school and if she has classmates make comments of a headache or such…she says my sister would love just that, or something along those lines.
I was on Inside Edition a few years ago, but it still didn’t get through to people what it was. I wish we could seriously get a reality TV show. I mean, come on with all the garbage that there is on TV! When peoples lives are consumed of getting their nails done, tanning and gossiping and be immature…and we are fascinated by that? What about the fact that all of us have found the strength deep inside to keep going and be alive! We get out of bed everyday, we go to countless doctors, we keep going. It just makes no sense.
“You Can Google It” TN is…well, it’s still Tennessee.
Trigeminal Neuralgia is not the worst DIAGNOSIS.
Trigeminal Neuralgia is not the worst to be DIAGNOSED with…by REAL DOCTORS. The medical PROFESSIONALS, who coordinate the tremendous amount of tests we must endure, to ‘have’ Trigeminal Neuralgia.
Trigeminal Neuralgia can have a devastating effect upon ones life and those around us; as it has/has been to mine.
Please, let ‘Reality TV’ come to our door…I still have Chronic Navel Fuzz, maybe I could have laser treatment for that?
“You Can Google IT” TN is scary and can be DANGEROUS to “Google”.
I like my Trigeminal Neuralgia DIAGNOSED, with a side of reality. : )
This blog has brightened my day, thanks guys!
I can’t tell you the number of times people have given me articles on fybromyalgia…no it’s two words, I’ll spell it if you’d like…or the relative who says “oh, it’s worse than a migraine?” when she knows that I have had two brain surgeries…
The paradox that I always feel is whether to tell people that it is called “the worst pain known to man” or “the suicide disease”. I don’t like drama queens, and I feel that by saying those things it will make me sound like one. So how do I describe it otherwise? The word “severe” just doesn’t seem to communicate it well enough. Yet my husband and friends who are in the medical field and who have connectings to doctors and neurologists all hear this response from them…“oh, I am so sorry…”. Well, at least the doctors get it. And my good friends who have witnessed the downhill spiral from thriving to diving. They get it too.
A storm is blowing in, and, as with every other storm, the hole in my head starts to ach keenly…hubs and I think it is not just the arthritis that hurts, it’s the metal in our bodies that do it as well, and sometimes worse.
Thanks Bob for this mini-rant thread. It feels good to get it out…
Lily