Hello fellow sufferers.
I went back to my Doctor today after seeing her on Friday as i was not able to function on Tegretol, she told me to cut the dose down by 200mg a day taking me down to 400mg. I am still feeling rubbish , shaking all the time, itching, eyes not focusing, dizzy, depressed , just rubbish and at the end of my tether. Anyway, I went in and sat down and said, I feel a little better in myself but the pain had gotten a lot worse. She said, 'Sorry who are you?" I couldn't quite believe it, I explained who I am and what I'd seen her for on Friday and se said, 'well if your having more pain up the dose!' I said on Friday you told me to lower the dose as I'm feeling so bad, she said, well you can up it again now as your probably more used to it! I then told her I have a large lump behind my ear , she had a feel and said, its a swollen gland, you must have an ear infection, I said I didn't so she had a look and said 'No you don't. so I asked if it could be connected to the Tn. She said no but didn't offer any other explanation, just said it will go in a few days. I told her it had been there ages, she just shrugged.
It was so bad it was almost funny!! Thank God I have an appointment with the Neurologist next week.
Hope you good folks are not having bad days xxx