Hi everyone. I'm just curious as to how other people explain to people, in not too many words, exactly why you can't open your mouth enough to speaknproperly or why you visibly flinched when theyswooped in to kiss your cheek. It's not like I'm bailing people up in the street but sometimes an explanation is warrented. I find that people's eyes glaze over if I go into too much depth. Thanks, Cathy.
Check out Scott’s discussion on TN Informatiom cards. They are the cat’s ass…if we’re allowed to say that here. (It’s late and I’ve had my bedtime meds-
Bellalarke
HERE IT IS, PRINT THEM OFF. : )
Go above to resources tab up above
TN EMERGENCY CARD
And for family…in depth grrrrreat
analogy is…type in search box here… SPOON THEORY
When I could not speak at all for 8 days straight, I just printed and handed to people the fact that "I can not speak due to a painful condition called trigeminal neuralgia." That was it. People were very kind and did not ask further questions. Sometimes I just wanted to give this very short form. In case of contact with people who you would naturally give the longer card you could have that for them. Or if they had further questions after the simple declaration "I can't speak". But your case sounds different than mine because you can say a couple of words. But that was it. Short and sweet a note that said. "I can not speak due to a painful condition called trigeminal neuralgia."
Thank you everyone!
"I have something called Trigeminal Neuralgia. Facial nerve pain. Can't open my mouth properly."
"Don't kiss me, I got facial nerve pain. Hurts like hell."
I like the idea of having a card or something to show people. Right now I'm in nursing school, so I just tell people what I have and they understand. I haven't had to explain to anyone else, except family, as nursing school is basically my life at the moment.