Okay, a little history for those who don't follow me around every minute of the day. ;)
I have had left-sided pain off and on since August of this year. In fact, when I saw my doctor in August for what I called "the worst pain of my life" (hahaha, I knew so little at the time) my doctor was convinced I was having a stroke because the left side of my cheek and lip was kind of droopy.
I was not having a stroke. The ER doctor actually kind of giggled, and sent me on my way after a shot of Toradol.
Fast forward to October. The face pain stopped feeling like a face-migraine and more like being electrocuted randomly. In the beginning it was a few shocks over the course of a day, and by the end of October it was almost 24/7. Horrible.
I saw several doctors, from my regular guy to a few urgent care doctors when I couldn't get in to see my guy. They diagnosed me with everything from:
- ear infection
- TMJ (which I actually have had, but for about 15 years with no symptoms other than the jaw clicking. No pain)
- post-herpetic neuralgia (without the herpetic part!)
- a tooth problem (nope)
- more ear infections
- and then finally to TN.
I started Tegretol at the beginning of November and almost instantly noticed a difference. The electrical pain when away, although unfortunately it gave way to a constant, aching, pulling kind of pain that sticks with me almost all the time.
A doctor at the ER gave me hydrocodone, which was very helpful in putting me to sleep but did nothign for the pain.
I saw my regular doctor last week to get a referral to a neuro, and in addition he increased my Tegretol. I'm not a fan of the side effects, but what works, works. So far I'm taking the big half of my dose at night so that I can be tired and dumb and itchy in my sleep instead of at work.
Unfortunately my neuro cannot see me unto January 28th (ugggg) and now that my regular doctor has referred me out, he sees no reason to see me again. (This was his nurse speaking)
At this point, I'm wondering if there is a second medication that can be added on to help with the constant pain. I've read about a few, but I always feel awkward calling up a doctor and saying "hey, can you give me this drug?" Even though they aren't narctoctics..still.
So...any opinions on my next step? Do I just keep on keepin' on with the Tegretol until the end of January? Do I press my doctor to prescribe something extra? Do I go the urgent care route?
Thank you in advance for your help.