After namy yrs of facial pain and having most of my teeth drilled,filled and pulled out it has ony got worse.It has been pointed out that I might have tinatus,which makes sence.I have ice pick headaches (since child,no tearing or nasal conjestion)which are a nightmare.I have not had an attack since May last yr.My doc has left me with tegratol and told me to take them if the pain kicks off.(I have dull nagging constant pain all the time)She said if it stopps the pain it is TN.Now i read on this forum that it damages liver! Also i am lead to believe that you need drugs in system for a while for them to work.And sometimes they do not work anyway.Do I have TN? or Don't i have TN. The pain changes to.Over the last 10days it has felt like someone has punched me in the face.Literarly! bridge of nose.Inner bridge of nose eye and eye socket.Wearing my extra light glasses has even become difficult.But I'm not sure the pain is bad enough to warrent taking contant drugs.It is draining but not agony (till i get a real attack which frightens me to think about it) Si I do not know how to tackel this. I tried nurontin for a month at the tail end of the attack in may but To be honest..I don't remember much of that month.I spent most of it as a zombie.I do remember refusing any more as i was unable to work and i need to go back to work for fear of loosing my job! If I go back to doc what should i be asking for???
research suggests sumatriptan has an effect on the trigeminal nerve ask for that as it sounds like they dont now what is going on at the moment ask for a MRI scan of the trigeminal nerve
Will that give me a conclusive answer do you think? And what happens if they don't find any thing? Guess thats a bit of a fear to. Silly I know.Something has to be causing it.
I guess I'm tierd off not understanding it.Everyone seems to suffer different symptoms.One min I'n convinced and the next I'm unconvinced.
Was thinking of going back to doc as this new pain is depressing me.I feel,almost like a fake as I do not have it as badly as the others on this sight.Or thats how it seems.
I went to 3 different nuerologists before I found one that "listened" to me, all my symptoms and we went from there. I had all t he MRI's scans, ect...was put in both tegretol and gabapentin. All drugs can have some kind of lasting effect, blood tests can monitor this, so make sure you get these on a regular basis.
My pain is somewhat controlled on these drugs..it was suggested to me thru this site that i start a journal, so I can see what triggers flares and that has been very helpful....I have progressed in symptoms since I was first diagnosed so I know I am still fighting this but with the right Drs and the great support here, it makes fighting this a little easier!
Best of luck to you!
It will help them understand the condition a bit more if they dont find anything there are other avenues they can explore seems you have not been force full enough in your quest for an outcome to your problem
jacksharky said:
Will that give me a conclusive answer do you think? And what happens if they don't find any thing? Guess thats a bit of a fear to. Silly I know.Something has to be causing it.
I guess I'm tierd off not understanding it.Everyone seems to suffer different symptoms.One min I'n convinced and the next I'm unconvinced.
Was thinking of going back to doc as this new pain is depressing me.I feel,almost like a fake as I do not have it as badly as the others on this sight.Or thats how it seems.
Had my rant.Isn't my spelling bad when have so much to say! I must get on with this and sort it out.Will make docs appointment tomorrow.Will ask for for MRI.
Better get on with it now.Or I wont have the time or the energy.Have some big events to organise next year.
Just having a moment today.Thanks for your replys.I hate going to the doctors.I always feel like i shouldn't be waisting their time.I'm the same with police.Always feel guilty.(I've never done anything naughty).
I've had a good day.Only the odd flash of dull pain in face and teeth.Feeling a little more optomistic.
HI jacksharky it them ages to diagnose me in the end they sent me to london to the national neurology hospital queens square the proff Peter Goadsby world renowned neurologist diagnosed me so keep going for it
jacksharky said:
Had my rant.Isn't my spelling bad when have so much to say! I must get on with this and sort it out.Will make docs appointment tomorrow.Will ask for for MRI.
Better get on with it now.Or I wont have the time or the energy.Have some big events to organise next year.
Just having a moment today.Thanks for your replys.I hate going to the doctors.I always feel like i shouldn't be waisting their time.I'm the same with police.Always feel guilty.(I've never done anything naughty).
I've had a good day.Only the odd flash of dull pain in face and teeth.Feeling a little more optomistic.
Hi jacksharky don t forget your doctor is not a consultant neurologist ask him/her to refer you to one if they wont change doctor
steve hill said:
It will help them understand the condition a bit more if they dont find anything there are other avenues they can explore seems you have not been force full enough in your quest for an outcome to your problem
jacksharky said:
Will that give me a conclusive answer do you think? And what happens if they don't find any thing? Guess thats a bit of a fear to. Silly I know.Something has to be causing it.
I guess I'm tierd off not understanding it.Everyone seems to suffer different symptoms.One min I'n convinced and the next I'm unconvinced.
Was thinking of going back to doc as this new pain is depressing me.I feel,almost like a fake as I do not have it as badly as the others on this sight.Or thats how it seems.
Appointment with doc made for fri 4th nov at 2.10.Lets see if i can get this refural. And the long journey begins…
Hi let me know how you get on and be fobbed off stick to your guns it might take a while to see a consultant but at least its somebody who knows what they are talking about you dont hear it must be a virus coming out of their mouths
jacksharky said:
Appointment with doc made for fri 4th nov at 2.10.Lets see if i can get this refural. And the long journey begins......
Will keep it in mind "If I can hear it over all that ringing" LOL! Will let you know what she says.She is usally pritty good.