Hello
(Please excuse my english , there can be some mistakes , i’m not native :s)
I read a lot of articles on the internet but still i cant rly figure out what is going on.
My name is Tomas and , I’m 24 for year old man from Slovakia and I have constant facial pain for over a year and i just want to ask if somebody can help me. („Hello Tomaas“) Like if somebody is dealing (or was dealing) with something similar to give me some hint or anything because i fell like i’m hopeless case. This message will be kinda longer because i want to explain everything from the beggining to the current situation in detail. I hope someone will read it :P.
It all started over a year ago when i’ve been seeing my dentist because he found that i have 7 caries on my teeth. He fixed first 6 caries and when he looked at 7th he said that the tooth is „dead“ so he has to do root canal. After that i was always feeling pain in this teeth so i was visiting him again and again. He kept doing root canal , i mean cleaning the teeth canals over and over. The pain didnt go away , so i decided to extract this teeth (because he didnt inform me about other options :S) , but unfortunately pain didnt go away either. After that it went worse , i was feeling pain at first in left side on my face and after that on both sides and this is my current situation. Constant 24/7 pain (except sleeping) on both sides of my face in he area of ,upper sided teeths,jaw,TMJ,cheeks,ears. Pain never stops , it just change intensity , sometimes it is little less painfull , sometimes it is really bad ( i would say in scale 1-10 , it goes between 3-8). Also sometimes pain in one side is dominant . Funny thing is there is no starter of this pain , nothing affects it . I mean for a year i didnt find anything that starts the pain , lower it , no condition , hot/cold , no weather effect , standing , siting , runing , happy , depressed – NOTHING , it is always the same , just changing intensity.
Only two maybe-useful things i realized are that when i’m in a bus/car and when it jumps or vibrate etc i think it lil bit irritate the pain but maybe its only in my head i dont know. Second one is that when i lie down and put one side on my pillow , the second side (one which is up) is painfull mostly in the cheek. I mean the epicenter of pain kinda change from upper jaw to the area of cheek bone. I really try to find some rules or regularity of this pain and this small things are what i found , but it’s just rly small probably pointless things.
After extraction of 3 tooth with no effect i was sent to maxilofacial department (dealing with facial pain , but mostly TMJ) where i was told my problem is TMJ disfunction , so i was using nightguard, done som ultrasonic treatment, using some relaxants medication , speak less , relax , not eating hard food for like 3-6 months with no effect. During this time i visited this department like 10 times and they always told me the same thing – TMJ – dont speak – dont eat hard food – no stress and it will go away. Well thanks a lot. Also it was weird for me because i have absolutely no pain when opening my mouth , speaking, no clicking jaw sound etc , nothing like other pacients dealing with TMJ. At the end i felt like they just dont want to deal with my case anymore. I was seen by ORL,Ortopedist,Eye doctor, Neurologist. I was at many X-Rays,head CT,blood control etc , but everything was good , without any issues they said.
Then totally hopeless i visited clinic which deal with various pain issues (i tis called algeziologist in my country or something like that) and he told me it could be „atypical facial pain“ and started to try different drugs on me. At first i was using analgetics , then Biston , Tegretol, Serlift and Tramal (every medication for a week+) with no effect.
Finally i visited neurologist second time (the better one i guess) and he told me it could be Trigeminal neuralgia V. So she gave me Gapapentin which i’m using right now like for a week with no effect. Also she told after that i will go to MRI (i quess its the only thing i wasnt at (i was at EEG before))Thats the current situation and i’m hopeless , i don’t know who can help me with that. I dont think MRI will show up something as everything other didnt aswell.
Summary:
Both sided constant facial pain with changing 4-8 intensity and occasional pain dominance of one side mostly in area of of upper jaw and upper sided tooth. (for a year )
Seen-
ORL,Neurologist,Eye doctor,Ortopedist,Dentist,Algeziologist
CT,EEG,X-Rays - nothing
Tooth Extractions ,Relaxants (Surgam,Dorsiflex etc), Biston,Tegretol,Tramal, Serlift, Analgetics,Gabapentin- no effect
(I’m 24 year old man which is another weird thing , because every doctor which treated me said that this kind of pain is typical for older people , especialy woman ... so i’m kinda rare ...yupi yey)
Anyone who helps me how to deal with this modafoking disease is my king forever!
Thanks a lot.
Tomas
