Anyone else on here with the same thing? Is there a community on here for just this? No triggers just constant burning pain in upper molar - I’ve had 4 root canals in same tooth. Been to numerous uneducated doctors who think I’m crazy. Saw on here where a member responded to pain medications. Everything I’ve read and studied on this problem says pain meds don’t work but I’m taking Tramadol 50 mg -6 pills a day (300mg) total to function. I took seizure meds for 6 months with no relief and terrible side effects. I live in West Palm Beach FL and am desperate to find a neurologist who cares and deals with this. Is there any kind of tests to determine this condition? I’ve read where surgeries don’t work for this. I don’t want to be heavily medicated to get through the day but I’ll do what works. This community has been wonderful since I joined a couple of weeks ago - just trying to find others just like me to trade info, meds, etc. I’m trying to get into the Cleveland Clinic. Waiting for a response.
I agree with last post. Dentists are often not familiar with tn. I spoke to a woman who had a trauma induced TN. Not sure how you’d deal with that. Gamma may work? See a Neuro about would be my advice, preferably one with experience with TN.
Hi Nancy - The last root canal last week was supposeded to be just opening the tooth up and exploring and hopefully cleaning up overextended roots. He knew what I had already been through and 3 hours later when I go to pay a whopping $2200 (that was never told to me) they said he did do a root canal??? I feel so taken advantage of - I had all of my info I had printed on the nerve pain and told him my entire history. Amazing. Please tell me what meds you take again. My old clueless neurologist called in darvon or darvocet for me today with Effexor - I used to be on Effexor before all of this happened. I have been taking Tramadol 50mg up to 300 mg daily for over a week now - it helps but not enough and I feel so bad on it. Going to a new neurologist on Wed. that I got off a facial pain mgt website. I hope he knows about this. Were you ever given any tests to determine exactly what you have?