Oct. 7th 2013 will mark the 1st official day for Global Awareness for Trigeminal Neuralgia sufferers.
What better way to educate and demand more research to find a cure. We need you to sign!
Link: http://www.ipetitions.com/petition/trigeminal-neuralgia-awareness-day/
Can we get this on Facebook so we can forward to everyone to sign?? Lisa
great great idea . hope it'll be internation day.
can i ask why so far next year ? does it take plenty of organization ?
i need to ask a very silly question please: when trying to sign the petition it is asking for a password. i have tried several and it keeps telling me password is invalid. Am i missing something or just having a very 'dumb' moment (im having lots of those lately thanks to the meds!)?
Hi JC,
thanks for the reply. It is still asking me for a password but i will try on someone else's PC and see if it is doing the same thing.
Betty.
Im having the same problem! :( i dont know what to do... i tried signing up with the site and that diddnt work either keeps saying invalid password!
its difficult to ask ppl to sign the petition when this is happening. i cannot seem to bypass the 'invalid password' :(
SufferingJen said:
Im having the same problem! :( i dont know what to do... i tried signing up with the site and that diddnt work either keeps saying invalid password!
WONDERFUL NEWS! We sure need some recognition and awareness. Doctors have not bothered to update their knowledge on TN, and in medical schools they are still teaching that there is only 1 type, and anyone who claims to have constant pain instead of shocks (type 2/atypical TN) should be sent to a psychiatrist because it's a mental problem. Very frustrating. We have a graphic artist among us. Jujubeee. What would you think if I asked her to make a logo for TN awareness day, Oct 7 2013?
Got it signed a few days ago. Wonder how many people have signed it so far?
This petition is being presented to the World Health Organisation (WHO) as they are the people to contact within the United Nations. We have now reduced the amount of names needed to 10,000 which is much more achievable. Donations are NOT required...just your name. Any money raised from the sale of ribbons (which have just had the final proof before being made) will go to facingfacialpain.org who have a lot of research taking place right now! Anything we can do to support them will help us all in the long run...and an international awareness day will definitely help to get more specialists and research to find a CURE.
Please please put your name on the petition if you can and forward the link wherever you can. We can't achieve this without YOUR support.
I have added a link to the petition to as many TN groups I can post in on facebook. If you can't find the link please go to the Neuropathic - nerve pain support group...the link is definitely there.
We have just over 700 signatures so far. Lets have a big push and get family and friends to add their names!! We don't need anyones address or any donation...just a name...and a comment if you like...but lets try and get some more names on the petition...please!!
The ribbon is already designed and being produced as well speak...as is the thank you card that comes with the ribbon. It takes a while to get the petition done and then it is presented to the World Health Organisation....they handle health related issues in United Nations but YES it will be an international awareness day. We need awareness, further research, education and ultimately a cure! It is NOT just for TN but for all facial pain...and whilst we keep trying to get sponsors we know we have time because we have almost 12 months. Please, please bear in mind that the few people working on this also have TN and are having flare ups and bad days/weeks etc...so we had to set the date to one that didn't put too much pressure on us.
I really hope this gets as much sharing and publicity as possible.
I haven't heard anyone else mention the password problem...I'm not sure why that's happened but will look into it.
Nikki
If for some reason you get a page asking for a password (which I haven't been told about until now)...if you put trigeminal neuralgia in the search box it will take you to the petition page.
If it makes a difference here is the link I'm posting
http://www.ipetitions.com/petition/trigeminal-neuralgia-awareness-day/
It can also be accessed by going to
Nikki do you have any idea what the ribbon looks like?
This is awesome. I'm about to email this to everyone I know. I'm new to the group, but I hope I can help!
Awesome…definitely signing !! 
New TN ribbon, from TNNME's facebook site, and it's my favorite color of all time, so it really does appeal to me. 
The ribbon could do without the lighting bolt to me not a cute idea.
Marcy,
I wondered about the writing and the lightning bolt, since no other symbolic ribbons have writing on them. This may be the first generation, the first try, that might just become a plain teal ribbon soon. We never know.