Can somebody tell me if members/users of this Forum (Living with TN) are also approved as members of TNA?
Are there any member dues or "secret handshakes" involved to get a member discount at the TNA Store?
I was interested in the medical history data module that John Koff is touting in the newsletter; knowing I could do the same thing with a 2 Gbyte thumb drive. Just curious about TNA dues/fees more than anything at this point. Thanks in advance. Rick
As far as I am aware this group is not affiliated in any way to TNA. Ben's Friends is a free umbrella of groups for rare illnesses.
I am a moderator here and a member there. I was TNA's webmaster in the late 1990s. As far as I am now aware, the Association does not charge dues. They do solicit their members for donations.
I believe you are correct concerning the medical history data module which TNA has developed and represented to its membership. An unfortunate aspect of their chosen hardware is that it cannot easily be mounted to many thumb drive ports because of the extension of the card to both sides of the data plug. The data form provided with this hardware is also eight pages long, which can make it a bear for some folks to fill out, despite the benefit of completeness.
For an alternative to TNA's concept, feel free to visit the sub-tab under Face Pain Info on our menus, which provides a portal to a one-page Attending Physician Advisory form. Several of our members have advised me that they already carry copies of this form on paper in their wallets or purses.
Regards,
R.A. "Red" Lawhern, Ph.D.
Resident Research Analyst
Richard A. "Red" Lawhern said:
I am a moderator here and a member there. I was TNA's webmaster in the late 1990s. As far as I am now aware, the Association does not charge dues. They do solicit their members for donations.
I believe you are correct concerning the medical history data module which TNA has developed and represented to its membership. An unfortunate aspect of their chosen hardware is that it cannot easily be mounted to many thumb drive ports because of the extension of the card to both sides of the data plug. The data form provided with this hardware is also eight pages long, which can make it a bear for some folks to fill out, despite the benefit of completeness.
For an alternative to TNA's concept, feel free to visit the sub-tab under Face Pain Info on our menus, which provides a portal to a one-page Attending Physician Advisory form. Several of our members have advised me that they already carry copies of this form on paper in their wallets or purses.
Regards,
R.A. "Red" Lawhern, Ph.D.
Resident Research Analyst
Rick, did you intend to add text to the quote?
R
Red,
Thanks so much! That's exactly what I needed to know. It sounds like the AP Advisory form will more that "answer the mail" and save me the 16-20 dollars. Forgive me, but a got a chuckle out of plug-in interface SNAFU.
As a DOD logistics engineer (now retired), I've seen my share of those sort of mismatches! Thanks again, Rick
Richard A. "Red" Lawhern said:
I am a moderator here and a member there. I was TNA's webmaster in the late 1990s. As far as I am now aware, the Association does not charge dues. They do solicit their members for donations.
I believe you are correct concerning the medical history data module which TNA has developed and represented to its membership. An unfortunate aspect of their chosen hardware is that it cannot easily be mounted to many thumb drive ports because of the extension of the card to both sides of the data plug. The data form provided with this hardware is also eight pages long, which can make it a bear for some folks to fill out, despite the benefit of completeness.
For an alternative to TNA's concept, feel free to visit the sub-tab under Face Pain Info on our menus, which provides a portal to a one-page Attending Physician Advisory form. Several of our members have advised me that they already carry copies of this form on paper in their wallets or purses.
Regards,
R.A. "Red" Lawhern, Ph.D.
Resident Research Analyst
Rick, in reference to the Attending Physician Advisory form, I for one of many am eternally grateful for it. I filled it in while feeling well and pain free and popped it in my wallet for future use, I have actually been told off my an emergency Maxfax Dr for not talking to her and writing everything down. I was in the midst of a severe pain spasm session and every mouth movement triggered 8-9 pain!!
Red,
Yes, but I'm still learning how to negotiate my way around the site and think I "fat-fingered" something. Since I didn't see how to recover from that error, I started a new reply with same intent as the original; hence the "Thank you" note above. Thx, Rick
Richard A. "Red" Lawhern said:
Rick, did you intend to add text to the quote?
R
Yikes!! Talk about having a great bedside manner...What is Maxfax Dr? A maxillary something or other?
Also Jackie (and Red), I seem to be putting my replies/comments in the wrong places for some reason, but I'll get it figured out. Sorry.
Jackie said:
Rick, in reference to the Attending Physician Advisory form, I for one of many am eternally grateful for it. I filled it in while feeling well and pain free and popped it in my wallet for future use, I have actually been told off my an emergency Maxfax Dr for not talking to her and writing everything down. I was in the midst of a severe pain spasm session and every mouth movement triggered 8-9 pain!!
Don't worry about it, Rick... you'll get it sorted in due time. Basically, the NING interface takes a bit of learning. Rule of thumb: to reply to a point made by another poster in the thread, you can either go to the "Reply to Discussion: box at the bottom, or you can Reply to a specific comment by selecting the Reply option immediately below that comment. When you Reply to a specific post, the original post text is italicized and appears with your reply.
Regards, Red
Richard A. "Red" Lawhern said:
Don't worry about it, Rick... you'll get it sorted in due time. Basically, the NING interface takes a bit of learning. Rule of thumb: to reply to a point made by another poster in the thread, you can either go to the "Reply to Discussion: box at the bottom, or you can Reply to a specific comment by selecting the Reply option immediately below that comment. When you Reply to a specific post, the original post text is italicized and appears with your reply.
Regards, Red
Red,
Again. your comment/reply provided just what I was wondering about. Thanks for the tech support and instructions I needed. Rick
Richard A. "Red" Lawhern said:
Don't worry about it, Rick... you'll get it sorted in due time. Basically, the NING interface takes a bit of learning. Rule of thumb: to reply to a point made by another poster in the thread, you can either go to the "Reply to Discussion: box at the bottom, or you can Reply to a specific comment by selecting the Reply option immediately below that comment. When you Reply to a specific post, the original post text is italicized and appears with your reply.
Regards, Red
Sorry Rick, it's a Maxiofacial Dr, specializing in facial pain I think?!?
Rick Bruce said:
Yikes!! Talk about having a great bedside manner...What is Maxfax Dr? A maxillary something or other?
Also Jackie (and Red), I seem to be putting my replies/comments in the wrong places for some reason, but I'll get it figured out. Sorry.
Jackie said:Rick, in reference to the Attending Physician Advisory form, I for one of many am eternally grateful for it. I filled it in while feeling well and pain free and popped it in my wallet for future use, I have actually been told off my an emergency Maxfax Dr for not talking to her and writing everything down. I was in the midst of a severe pain spasm session and every mouth movement triggered 8-9 pain!!