Has anyone else experienced this? It Was a wonder drug, wexcept it caused me to have a major flare-up of my IBS. And then the severe suicidal ideation. So I’m back on gabapentin, which isn’t helping NEARLY as much. Lots of ear pain. Lots of pain in my cheek and upper teeth. But mostly my ear. Ugh. At least I’m not thinking about driving off a steep embankment anymore.
Hi Beth,
It is always a good idea to monitor mood when taking the medication. My neuro, when he's aware of potential mood risks, which many meds list as potential adverse reactions, will ask me to tell those I'm close to, to monitor my mood as independents and be aware of any negative effects. This helps any drop in moods to be identified quickly and objectively. Its always good to remember to, one step at a time, whenever things become overwhelming. And most importantly, if you feel low - to talk to your family, friends and doctor.
Sorry to hear you're aching again, but very glad to hear you feel more like your normal self.
Hi there, yes it caused me to try n stop n constant excruciating maddening pain. I didn’t have all the drs I have now, I just started getting cal optima in July but I hadn’t been hopeful for so long n wasn’t getting answers. I wanted the pain, loneliness, feeling like I was crazy cause I wasn’t getting answers or compassion n it was real crazy pain. I was 51/50 in July for almost a full 72 hrs. All county so it was so horrifying, I just wanted the pain to go away for a few days. Now I realize I could have been gone permanently before I got the diagnosis n help. I have tn2 atypical . I’ve been left without help , unattended to for so long that it’s so very hard to treat n is present 6 out of 7 days. The pain can hit 17 out of 10 n I pray for days of 9. My life is of no one who can understand what this is so they don’t get the pain complaint. It truly is the invisible disease n I see why it’s called the suicide disease now n u no longer judge those"51/50 ers. Now I’m on meds that don’t work n they are going to the next step. We have to try our hardest to remember our drs have to use the step therapy. Medication, then another, then small injections or small surgeries then the big stuff, mine went undiagnosed n untreated for 3 yrs so it’s over the days of first catch better odds. I hear it gets worst in time and never fully goes away. But what we have to think is this. Botox may help. If it comes back, Botox again. If ppl don’t underst, force them to, educate them with medical write ups at a family friends meeting. If u feel alone, email me , if u feel like the pain is so bad find the nearest ER at a hospital that has a neurological field/practice/research department only. They are the only hospitals that will help u. Regular ones give u pain pills that we all know don’t help n send u home. If ur in the OC UCI is great. In advance look up which hospital in ur area have a special neurological dept. they will know what to do n help u get the pain down, put some hope back in u n maybe set u on a road of options to fix some of that pain. Email me anytime I don’t know if we’re alloweed to post our email but I will try if the block it I will understand ■■■■■■■■■■■■■■■■■