as much as i am thankful for this group and the support that is offer, I AM SUFFERING IN A BAD WAY TODAY I WANT OUT AND OUT NOW, I CANT HANDLE THIS PAIN ANYMORE, Does anyone know af any support groups in South Australia, so need to talk but don’t know who to turn to!!!
Dear Kerri,
The TNA Australia group have a support group in Adelaide you can get in touch with, the details are:
Contact Graham / Liz Boyer on 08 8392 2781
Meetings location: Burnside Town Hall, Civic Centre, Cnr Portrush / Greenhill Roads
Next meeting date: 28 November 2pm to 4pm.
If you need to talk to someone before then, please give Graham or Liz a call directly or otherwise you can call the Australian TN Association based in Sydney a phone call on 02 4579 6226.
If you are in need to talk you have options, go and see your gp for links to counselling, or a psychologist. Call lifeline support phone line in your state, usually a free call or cost of a local call to do so, they’ll be listed in the beginning of your phone book - I’m having trouble loading web pages or I’d get the number for you myself, I am sorry about that.
If your pain is quite severe today, please attend your local emergency department or if you’re unable to drive and no one can drive for you, please phone 000 and ask for ambulance care. If they don’t understand about TN and some emergency department lower level staff are ignorant of it, ask to speak with the department supervisor or neurologist on staff there. I hope I’ve been of some help Kerri, I do know only too well what you’re going through and I have been there many times myself.
My main port of call when in such severe pain was for me to get to the emergency room as soon as I possibly could. Take care Kerri and I hope to see you on here again soon!
Best wishes for relief from your attack of TN soon!
Kerry hugs and kisses to you
YOU NEED TO HAVE MVD SURGERY. IT IS THE ONLY OPERATION THAT STOPS THE "SHOCKING PAIN" AND HAS A CURE OF 95.2% . BELIEVE ME WHEN I SAY I KNOW HOW YOU FEEL. I PRAYED EVERYDAY TO DIE I WAS IN SO MUCH PAIN. I HAD THE MVD SURGERY ON AUG. 12TH AND THE "SHOCKING PAIN" IS GONE. I STILL HAVE ISSUES, AND PRAY THIS TOO SHALL PASS. I WILL PRAY FOR YOU. PLEASE GO SEE A NEUROLOGIST AND GET SOME HELP. BLESSINGS ESTELLE.
Dear kerri,
The only course of action for me was the MVD surgery. I could not tolerate any of the medications, and I just wanted God to relieve my pain and take me home. When my surgeon told me that “he never lost a patient on the table” I told him I didn’t care if I was the first, because I couldn’t live like this. Today I am so sorry and ashamed that I was so weak in my spirt, but physical pain is sometimes just too hard to bear. I am still having small issues compared to where I was prior to the surgery. My teeth feel strange, and sometimes hurt. I am unable to chew, so I stay on a soft diet. I have tinnitus (head rings), neck cracks, temple pain, right shoulder pain, and ear pain. All these issues come and go so I am convinced it is part of the nerves still settling down. To be fair, I had TMJ problems prior to TN. I am a nurse and thought I should understand all this, but I don’t. You will be in my prayers and I will mark your surgery date down. I will pray the Lord will be with you, and your doctors. Please keep faith! Blessings. Stelle.
Hi Kerri,
My husband has been in mental torment for two years with a loud siren in his head. They gave him Xanax to help him cope two years ago. He has adapted to it now, and is off the meds. Now I am taking them, and they help me so much because it not only calms me down, but it calms the trigeminal nerve down. Ask your doctor for it. I only have to take 0.25 mg. of Xanax for it to take effect. I also have Restoril to sleep 15-30 mg., and I only take it when I have gone 2-3 days without sleep. If you can't sleep, you can't heal. In fact, you can go mad. I wasn't far from that point. This only happened to me on July 1st and I had my surgery on Aug. 12th. I don't understand how people have gone on for years and survived without MVD. I met a nurse who had the surgery, but it was for severe tics. She said she looked like a monster and wouldn't even go out of the house. She did not have physcial pain but was in torment. She said her last tic came 6 months after the surgery. My surgery revealed a large blood vessel pressing up against my trigeminal nerve and all they had to do was separate it with 5 teflon sponges. I was so relieved that they didn't have to cut anything. One day I will write about my ordeal. It was really a nightmare and a half. Everything that could go wrong , did. I will pray your surgery is uneventful.