I was just catching up reading the discussions and one thing just kept coming to my mind. Unless you have TN yourself you will never, ever, know the level of pain it causes. Doctors, healthcare workers etc. are clueless. No one, including myself and I am a RN, can fully explain just how painful this condition is. I have talked to other nurses trying to explain TN and they think its TMJ!!!! When a patient calls their Doctors office for help because they can't continue with the unbearable pain and get an attitude from office help who are clueless and don't help them immediately or return there call shortly, just makes me think how cold hearted our society has become. Just had to add my two cents. Again, I am sorry for all my TN friends who have been treated unfairly or wrongly judged by our healthcare system
It's like when we were in the infancy of mental health care in the days of institutions --- (ok we are still in toddlerhood)...
nobody had a clue what to do, there was shame, guilt, misunderstanding, mistreatment, no possible way of empathizing, invisible illnesses many times with a physical cause not a mental one -
Thanks for your sweet tweet here today--- I will have no pain until I go to the grocery store tonight - and I am one of the luckier ones
Hi Mat,
Totally agree with you, it does seem out society has become totally heartless. Everyone just seems to care about themselves and the healthcare system is sadly becoming a target driven machine. I too am a RN and work in Scotland and it is not that the staff do not not care, it appears to be just that targets have to be met to justify the existance of a health care system. I feel that due to never ending paperwork staff are not given a chance to enhance their learning and do not have time to listen to the patient.
It is very sad and after may years nursing am now looking forward to retiring as I feel I am not able to give patients the time they need.
Ann