I don’t know what to do anymore I’m so scared and so sick of living in pain. Every medicine I have tried does not work. My only symptoms are burning and teeth pain mainly one tooth. Does this truly sound like tn?? The neurologist said tegretol was my last hope and if not referral to neurosurgeon. I’m so scared everyone on here writes negative things about their procedures. What do I do??
I’m sorry you are having such a hard time! Please don’t give up the search! While it is somehow a comfort to complain to people that actually understand what’s going on, not every post is negative. There is a recent post asking for TN patient history and someone posted their success story. Also check out member blogs and entries listed under ‘groups’ and keep in mind those experiencing pain-free days are less likely to log on. ‘Out of agony, out of mind’ and no news is excellent news.
You have to weed thru the postings to find something helpful. And for that reason, I tend to limit my time here. Yes, I want to hear a measure of success. It is out there. I suffer from TN2 and I am making progress. A lot of progress from date of diagnosis. A Big that helps me is that I tell myself that I am a survivor, not a victim. It helps.Not all procedures have given me permanent relief, I am in a better place today.
We have all been where you are Jennifer. Yes your symptoms do sound like possible atn. I have had atn twice and it started in one tooth both times. The one tooth I had pain in every single for over a year. Even once I found a med that helped the pain was never 100% gone.
I think you said you had tried Amitriptyline? Just curious on what dose and how long did you give it to work?
Don't give up Jennifer. There are still plenty of meds to try. Are you waiting to see a neuro? Finding a good specialist is very difficult but completely necessary. And it takes time unforturnately.
I'm sorry you in so much pain and are so frustrated. We are here to talk to always.