I know how difficult for you to take care of your husband. Caregivers really have it ruff.
It sounds like his Docs know what they are doing. I had mine done in Denver. My doc does take out of town people. He
really know what he is doing. He has taught docs how to do the process. Some docs say that you can't put a wire for the
jaw area ( V3) as it will break from eating and yawning. He has developed a way to put the wire so that will not happen. Also my leads all go down the side of my face into my hair. Then is goes down the neck. It just looks like another wrinkle of the neck. He does not like putting it behind the ear. You can't see any of the wires at all in the face. When all 3 wires are joined together and go down the neck, it then goes under the collar bone and a little pocket it made for the generator in the chest. You have a hand held device that you put one end ( looks like a paddle ) on the generator in the chest and in your other hand you have all your controls to turn it on and off. It also allows you to change the feeling of the stimulator. Sounds weird and complicated; put it is not at all. I have pictures with it in me for the trial and the permanent if you want to see them. You can email me. We just need to pray that the insurance company comes thru then the rest is easy. It is a simple procedure with great results. I could not live without mine. If you have anymore questions please email me.
God Bless to you and Vic, Tell him to feel better. Put a warm cloth on his face.
Also Karen, tell Vic that anymore procedures that involve the nerve should not be done. That will cause the AD to be worse.
I have a friend that went to the Skullbace Institute and she ended up having to have the full blown hole in her skull. It is not what it was suppose to be. Also, what insurance co. do you have>?
Hi Karen…I hope when Vic wakes up he feels much better…I to have been confined to my bed since yesterday. I am anxiously waiting for Sept 10 to get here. Just knowing there is something out there that has helped me gives me hope to get through today!! Without hope we have nothing!! 5 years of searching and trying different procedures just to be disappointed time and time again sure does get to ya. He is very lucky to have u!! I also have a very supportive spouse. He is a complete angel. I got the nerve stimulator placed at Cleveland Clinic in Ohio…surgeon was Dr. Deogankar…It does take awhile to get a consultation with him so even if u think your interested call and get an appointment scheduled…prayers for a better day for Vic!!
Hi Cheryl...thanks for the info..maybe there is some hope after all...I will keep trying as long as I can...
Cheryl said:
Also Karen, tell Vic that anymore procedures that involve the nerve should not be done. That will cause the AD to be worse.
I have a friend that went to the Skullbace Institute and she ended up having to have the full blown hole in her skull. It is not what it was suppose to be. Also, what insurance co. do you have>?
I am actually recovering from having that surgery. I had trial done in January and it was left for two weeks. Normally he does one week but at one it still hurt too bad to turn on stimulator. He said I was a slow healer so he'd leave another week so I could tell if it helped. He said we were aiming for 50% improvement as there is No Cure yet. I believed it helped so in march I had the stimulator implanted with two Leeds. I was not prepao for it to make pain worse! First my body was rejecting the foreign objects t so he put me on bed rest. After another month I said I wanted one of the Leeds removed because it was stabbing into my trigeminal nerve! Month later I had surgery. He came in preop and said he didn't want to leave me with no help. So he wanted to reposition them away from nerve. I was so unsure but I trusted him and woke up next morning in less pain. I am 7 weeks past and still recovering as 3 surgeries so close together wipes out the body! But I can turn it on and it is helping more every day And this time I can't feel them. Praise God! This too was my last hope! Pray it will work for you! My Dr first me tioned it 2 years ago and I was scared ! But after much prayer and right Dr its done!
I am actually recovering from having that surgery. I had trial done in January and it was left for two weeks. Normally he does one week but at one it still hurt too bad to turn on stimulator. He said I was a slow healer so he’d leave another week so I could tell if it helped. He said we were aiming for 50% improvement as there is No Cure yet. I believed it helped so in march I had the stimulator implanted with two Leeds. I was not prepao for it to make pain worse! First my body was rejecting the foreign objects t so he put me on bed rest. After another month I said I wanted one of the Leeds removed because it was stabbing into my trigeminal nerve! Month later I had surgery. He came in preop and said he didn’t want to leave me with no help. So he wanted to reposition them away from nerve. I was so unsure but I trusted him and woke up next morning in less pain. I am 7 weeks past and still recovering as 3 surgeries so close together wipes out the body! But I can turn it on and it is helping more every day And this time I can’t feel them. Praise God! This too was my last hope! Pray it will work for you! My Dr first me tioned it 2 years ago and I was scared ! But after much prayer and right Dr its done!