Go Ask Alice, Yeah feels like a rabbit hole. ENT said most likely (not 100% sure) tumor was started by trauma to the nerve bundle (which involves the Glossopharyngeal, Vagus, and Accessory cranial nerves) during my neck surgery - either from intubation or the carotid sheath being retracted -- caused inflammation there which started the growth of the tumor. Because of the location, if any surgery is done there I will be in much worse shape than I am now. ENT just wants to do MRI in 6-9 months to see how fast it is growing. I asked about Gamma Knife and Seattle, he said he would be happy to send my info if I wanted him too. Hope we all find a curable answer someday.
I think of you, and I send you "The Little Angel" of health for your healing!
I know it is difficult to be positive when we suffer, but we believe this will help you remain "standing". I do artistic paintings and drawings to express my pain and helps me a lot to hold, even if I can not do it when I suffer too much. Must fill his time when it is possible. There are beautiful moments in life despite the disease.
Someday Life will be more beautiful!
All my thoughts are with you ..
Elle - is there somewhere I can view your art? Your profile "picture" expresses so much of what, and what I feel others of us feel with this painful and lonely condition. It truly captures the essence of this painful (to say the least) ailment!
Gail C My art is here : https://www.facebook.com/elle.xs.3
;-)
Wow Elle, you have some amazing pieces. Some of the detail is incredible! Thank you for sharing