Genetics suck, don't they?
My mother has Type I TN. She had Gamma Knife surgery 4 years ago. She's had no pain since then, but is on Carbomezepine.
From what I've been reading, I have Type I and II TN.
I'm also ineligible for any surgery since I have tachycardia.
Anyhow, this is what I'm dealing with at the moment. The pain is advancing. The burning is bad enough. I don't know if I'll be able to deal with the electric shocks, but they are increasing in range, and strength.
4/12/2014 - 4/14/2014
9:46am Severe burning pain: deep inside ear, side of face, jaw (2 lines), lower right molars, right underside of tongue, edge of chin and both top and bottom eye teeth on right, in front of ear
4/13/2014
9:12am...300mg Gabapentin
5:00pm....Took Gabapentin at 4:00. (This is Mom's previous prescription as my appt. with the neuro isn't until 2:00 on Tuesday). Have had 3 episodes, the last one at 4:50pm. Pain has moved around the lower jaw to center tooth, and center bottom of lower lip has electric shock feel. Spot in front of ear is swollen.
4/15/2014
Today, appt. w/ Dr. Patel. MRI scheduled for Wed. of next week. Lyrica prescribed today.
I hate taking medicine. I am praying the Lyrica works.
I will have to pay attention to side effects, espeically any addictive ones, thoughts of suicide, and mood changes. Dizziness, double vision, and confusion may also happen, so I cannot drive at the moment. Definitely no drinking....There goes my blog! :( Well, Nikki can appreciate the bottle of wine I had. Haha.
Took 2nd dose of Lyica this evening at 11:00pm. So, next dose is 11:00pm Wednesday.
4/16/2014
Pain is spreading into the back of my tongue, and the top eye tooth on the right side.
Nothing hot or cold to drink, and talking, yawning, and laughing sets things off.
Went grocery shopping and bought baby food. I can't open my mouth wide enough for a fork, so am using the smallest baby spoon I could find.
4/17/2014
Electric shocks are now spread to half the right side of my tongue.
I cannot talk without the red hot poker being shoved down my ear canal and then down the right side of my face.
4/18/2014
Electric shocks are now down the entire right side of my tongue almost to the tip.
As if the burning in my jaw and ear wasn't enough, I now have shooting electric shocks from my eyetooth up to my nose.
Had my mother call the neuro - I am taken off Lyrica.
Now what! He's closed on Fridays!
As an aside, just how much baby food do I need to eat to maintain a healthy calorie range? I figured out that I'm getting maybe 720 calories. I could stand to lose a little weight, but starving it off isn't my idea of healthy!