Kari, well done for enduring your MRI, I collapsed after my second to last one. For some reason I was in there 55 minutes and wanted to come out from the get go. The only thing that stopped me pressing the panic bubble was the thought I would have to go back in again. I never ever open my eyes! Oh no!
Oh Jackie,
That is awful, sorry you had to endure that.
My hubby and some family members gave me a pep talk about the MRI, reminding me I’ve done other medical tests that were so much worse then being in a tight cramped spot such as repeated barium tests, taking pop rocks candy that were on steroids, and having to chow down those horrible chalk like milkshakes.
This time I just kept me eyes shut, went to my happy place, tried to kisten to my music, and kept my eyes closed shut.
Now I just need to talk my mind off of things till I see the doctor/s again.
Oh don’t feel sorry for me sweet Kari, it is in the past now:) my last one I had my Dr script me a Valium, not so bad but I did see you cannot have that crutch to help you. Just like you I have had many horrid medical tests and worse but yours do sound dreadful my brave bunny.
Ativan is a miracle!! I usually take one if life has been really stressful and the MRI is adding to that. then I pretty much fall asleep and wake with Mark my dh encouraging me to let's go. While I hate the with contrast one, I figure they are part of the equation. Hang in there, keep telling yourself "this too shall pass"......
Kari, I'm sorry you're dealing with so much right now. I'll be thinking of you and sending positive energy.
So just to update, I’m still waiting to hear from my neuro’s office for an appointment. On the MRI front no news is good news I guess because we haven’t heard anything about those, which is making my hubby all crazy and driving me crazy while doing this. On top of this all day long I hear comments and get question on why I’m walking so strange. One person even had the guts to ask if I was driving because of how I’m walking, my reply back was simply I’m not drunk. I don’t know why but that one especially ticked me off. Then all of the questioning just makes think and worry about what the hell is wrong with me now. And now the cherry on top of this all is I’ve lost my voice and am coming down with something; even though I try my best to not get sick and very sick people anywhere like the pleage.
Ugh this has to get better right?
Kari,
It's probably not the same thing, but when I first wake up in the morning, it's hard for me to walk and I walk strange. After being awake and around the house for a bit, things go back to normal. I think it's a combination of the meds and the fact that I don't get any exercise, since I barely leave the house. Now that I've been working again for a few weeks, I've noticed that the weird walking problem has gone away -- I attribute this to walking at work, and basically getting some semblance of exercise (at least it's exercise for me)
I do hope you find the answer soon. I know how hard it is to deal with other health issues when you're already dealing with TN.
Oh, one more thing. I've been getting a sore throat and thinking I'm getting sick, and then it goes away. I'm still in this cycle, so I'm really hoping I don't get sick. I did read recently that extreme stress can cause sore throat, and I know I'm under extreme stress, so I'm hoping that's all it is. I actually was losing my voice for a couple weeks, and now that the stress is lessening, the voice is fine.
Crystal, I often start with a sore throat and expect a cold or flu then it recedes to a dull ache, this is almost a constant with me. As is a swollen tongue that catches on my teeth, sigh!
(((( Kari ))))
Of course it WILL get better!
Thinking of you, xox
Kari I’m sorry you have all this extra worry to deal with <3, I agree with Amanda, keeping my eyes closed always helped and then thinking of favorite memories despite the loud sounds. Concentrate on your breathing pattern as being still is important but breathing calmly will keep you less stress too . Also asking for valium if you have anxiety? Excellent idea, it will make all of the above that bit easier for you hun, best wishes x
Well GP office says the MRI scans look normal from the last time and no changes in the MRI. My hubby is trying to set up the appointment with my neuro right now, and his opinion my differ on the MRI scan.
Diffently caught something too:( I have fever that is coming and going now:(
I got somethin too right now Kari.... Blah... But try not to worry about the walking thing.. it might be something simple like a drug interaction. Hang tough!!
Min,
Since you have a big too does it make your TN go crazy? I just have a runny nose and stuffy at the same time; however, that little extra presure just tipped the scales towards mean super nasty TN pain, all day I fought the pain at work but two hours before the end of the day a light breeze knocked scale over sent me soaring in pain at 9. I had to have my boss call me hubby to come pick me up. It’s still pretty strong right now, but my meds brought the pain down to an 7. Kinda scary to think what the pain would be like with nothing at the moment any hoot I’m rbling just curious.
Well, before when I got sick it made me have sinus pain like I got after I had my sinus surgery. And it hurt bad. Intense pain when I would breathe in sharply.. that I got on the floor of my sinus cavity ..(that was from above where my tooth got pulled)--- from after the surgery to clean out infection that eventually went away. But when i got sick it came back!!!. But that only happened once when I had real bad sinus congestion and infection form getting sick. Now with this cold I don't know if it's the meds or just TN or what!!!*# @!!!!/ ??? But every time I get sick this happens. I'll see if I can explain it.
It feels like my head is in a bubble or there is water in it or something =.... I mean I can't focus I can't think straight I just don't know how to describe it. Like my head is full of air or something. Idk it sucks tho... BIG TIME. I hate being sick with TN I really do... It doesn't matter how sick even if it's just a little cold like this one seems to be.... My head is just like a bubble or something It RIDICULOUS!!!!! I wonder if anyone else experiences these feelings???
I'm really sorry you are having xtra PAIN right now dear. Do you have any percocets or vicadin you can take. I been taking my percocets for my fever and sore throat issues. I hope you feel better soon. {hugs}
I have had the sinus issues and face pain in the past so I am glad it's not in my sinus' this time. But every time I get sick my head feels wierd too. But that pressure pain does effect us!!!
Doctor's need to start coming up with new medical terms, such as "TN Sinus Infections"..
Totally agree with the new term TN sinus infection or in my case TN head cold or cold. That does sound awful with bubble head. Mine is sort of like that too but the bubble is in my head. My medications for tn are already pretty darn strong for days when I’m not sick; I take morphine IR and CR. it’s amazing that pain break thru that for me when usually it keeps my pain levels much lower. So it is frustrating to me. I called for the nurse at my GP’s office but they were out of the office today:( I’m going to try tomorrow to see if I can take anything else that might help.
So the good news is we finally heard back from the neuro’s office. Hooray! A bit of bad new is they can’t see til the 15th which isn’t that long now that I think about it, and have put on the list to get in earlier if there is a cancallation. So until then it’s a wait and try not to lose my temper with coworkers and their never ending comments and questions. A couple of days ago I had to fight back laughing out loud when I overheard them talking about me and the I got the same answer as you and she was kind of snappy with me. For the record these are people who just want to gossip and are negative un-nice people I try to stay away from (which almost everyone where I work). Anybody want to help with some silly thing to say like; oh I eat the McRib and the next thing I know is I’m having problems walking, I also can’t smell or taste anything but the McRib now.
UP DATE
Just to update all of yous. I saw my neuro today and he thinks it is a serious lack of vitamins or vitamin deficiency. I have to do some blood work and also have my breathing checked too. Apparently I have huge tonsils which in MRI showed restricted my breathing at times. Once my vitimins get corrected the drunken sailor walk should go away. Also my MRI came back perfectly normal, no changes at all.
Well, that is somewhat of a relief,, huh. That's an easy fix!!! :D Awhile back I was feelin real bad and nauseous and I had feelings of being real tired.. they did a blood test and it turned out I was low on iron. So I had to take iron pills for awhile.
I have huge tonsils, and worse, huge adenoids that block 90% of my sinus on one side. They want to remove them all, but I'm scared. Apparently the recovery for an adult getting their tonsils out is one of the most painful of all surgeries. I'm just scared it will make the pain worse, or somehow I'll get new nerve damage.
Thanks Min
I’m not sure I’m too convinced its low vitimins levels. But, well see. Last summer my vitamin d level was a 12 and I ended taking prescription vitamin d for 3 or 4 months.
Crystal,
Oh my goodness. Why do they want to remove your tonsils? That scares me even thinking about it. I’m not too sure what the doctors are going to want to do with mine. I hope I get to keep mine.