Never diagnosed...except by Dr. Google

1

I am new to this website, and to Trigeminal Neuralgia in general. I have been suffering with facial pain for two and half years, on both sides of face. It is constant pain, with random, shooting pains throughout face and ears. This also effects my teeth, gums, head and jaws as well. The tension from the pain will hurt my shoulders and back. I have been told that I have TMJ disorder (my jaw clicks occasionally) but I am not convinced. The pain brings tears to my eyes; I can't do daily activities either. I Have had MRIs done to brain, neck and lumbar spine (disc out of place, but not touching nerves). All normal. I am on my 6th neurologist who thinks I do not have any sort of TN ("Tn is only on one side of face, pain is ALWAYS a 10" blah blah...)

What are everyone's opinions on this? I greatly appreciate any answers!!

2

I have it bilaterally…I don’t know of TN affecting back and shoulders…keep searching for a neuro who knows what TN is, they all do not…a select few.

3

Hi Lauren so sorry to hear of your problems. Do you get any other strange symptoms, eye or ear problems? sinus etc

4

No, it's not always a "10." If it were, I would either be dead by now or in an asylum. Don't let some misinformed doctor tell you how you're feeling. My jaw pain is about always at a "6," but spikes to higher levels daily, especially as the day progresses.