I was diagnosed late 2013 with TN from my PCP. Not that I don't trust his diagnosis but I have trouble believing that my PCP can walk into the room listen to my symptoms and within a 10 minute (start to finish) make a final diagnosis. Of course, he gave me a pain shot and samples of lyrica. I have been waiting since mid January for the Neurologist to schedule an appointment (referral still pending per the receptionist this morning). The left side of my face tingles (pains) and my ear hurts all of the time. Before I commit to the drug therapy, I would like confirmation of a medical test (at minimum). A new symptom (past two weeks) has developed. I have trouble getting words out of my mouth. I think them and then start to speak but there is a slight delay. Does anyone else have that with TN?
Today I am seriously doubting my own sanity about this entire situation. Would greatly appreciate any support on this...
There is not test for TN vice a MRI/MRA, and even those are not always accurate. As for the speaking, I can not help, but wonder if it is a medication issue.
I hope they find the right medicine to help. I have tried tegretol and was not able to handle side effects, not able bring words out if my mouth plus clumsy. Another medication lyrica. Not effective. For couples of years lamictal was my savior. Unfortunately now not effective. The past 6 mos Dr added topamax. Another drug side effects I am not able to handle and function. I am continuing with the lamictal but added baclopen. It too is not helping. Each person is different. I've had TN for 9 years. First 5-6 years it was not as bad as it is now. Alot of people find medication very effective, plus there are procedures that help. Be positive, I know there is something that will give me long term relief, just like lamictal did for me.