Hi everyone still have pain after MVD 3 month ago and wondering how many months does it take for the nerve to heal ? Should i consider the MVD as failed ? Am still on meds to keep the flashing pain away. The burning is gone …
Thanks !
I had MVD in April, I am now completely off Oxcarbazapine for 3 weeks. I do not have the full blown pain, but get twinges from time to time. No searing zaps so far though. I hope you get some releif soon. Did your surgeon say he found places where the nerve was rubbing on an artery or vein? I think if these were corrected, you should eventually get relief. I take Magnesium chloride, calcium and sublingual B12 daily for nerve health. Glad your burning pain is gone. I would still have hope that your pain will settle down. Good luck.
If you are still having pain after 3 months I would guess that the MVD failed. All patients are, of course, different but I was pain free, except for incisional pain, when I awoke from anesthesia. My pain came back but after 4 years. I asked a panel of neurosurgeons at a TN Conference why the pain returns? Both the late Dr. Janetta and Dr. Casey replied that after 4 years it is probably another compression. If the pain returns or isn’t gone right after surgery the neurosurgeon missed a compression. Congrats on the burning being gone. That is the harder of the two to get rid of.
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Hi,
I had an MVD around a year ago. The Glossopharyngeal nerve was sectioned (cut) by the consultant, who added that there was no nerve damage as expected at the 5th, 8th, 9th and 10th nerves.
Let me quickly add that I went in with a diagnosis of Geniculate Neuralgia! This is a deep inner ear pain, ice pick in the ear is how we describe it, that when it hits either steps up gradually or feels like a Mack Truck has hit the side of my head. No jokes. the final result is the same.
Anyway, I still have the problem and have to wait at least until the New Year for the next (fourth) attempt to repair the pain in my head. So, however much relief you may get, be grateful for it. I was over the op within a couple of days, however.
everyone seems to list their meds, so here goes:
2x Tegretol three times per day = 1200mg
1x Pregabalin 225 twice per day = 445mg
1x Pregabalin 150 once per day = 150mg = 600mg Pregabalin per day
2x Paracetamol 500mg four times per day = 4000mg Paracetamol per day
1 x 15 microgram Butrans (opiate) transdermal patches ever seven days
15 to 20 ml Oral Morphine as required (up to twice, but not every day)
I also recently had a heart attack, so add in those meds AM and PM, and my anti-depressant (I wonder why??)!!
I’m not embarrassed to add that the addition of a bit of weed helps greatly for the pain. I am not a “Regular” user however.
so, if any of this helps or makes you feel any better, thenmy poor typing skills have been worthwhile!!
Chin up, Hope you get relief soon,
Saint Paul
Well let see, I had MVD last Oct. 2016. Yup still there. Have a good one. Love to ya.
Wheel for Legs Said that.
I had relief for a little over a month and then it can back full force. That was 8 years ago and the only pain I don’t get is the electric shocks. I have tried Gamma Knife twice, one to the back of the head and one to my cheek. I have also had stence
I also had stents into the face none of these worked. So l just take Meds. for now until they find something new that might work. I try to keep my spirits up because I have kids, grandkids and a great granddaughter that I want to see grow older. I am only 63 years young and there are people worse than me. Keep checking to see if something else will work for you if the MDV doesn’t work. Good luck and keep smiling.
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I had my MVD in 2012 and my pain was continuous until this year. I think I may be in temporary remission but I’ll take whatever I can get. The only thing that really helped me was tegretal but it caused skin condition.I now take only 15mg of oxicodone twice a day.
I had MVD two years ago. My TN was continuous (it never turned off). 6 months after the surgery, my TN came back, but way more mild that it was before. It still hurts bad though not as bad as before. I’m back on neuronton, but not as much as before. I decided to go back on it because it also helps alleviate nerve damage in my back. I’m only 48, so I’m worried about staying on this medication forever, but I don’t feel I really have a choice.
Good for you