MVD July 11, 2012

Well I did it. Went into surgery on July 11th here at Lancaster General Hospital, having a had a microvascular decompression performed by Dr. Eddie Garrido.

Let me just tell you there is literally no preparation for pain you experience when you wake up post op!

Today is Friday the 13th , two days post op and I am finally thinking I am going to live.

Here is what I can remember: got to hospital on Wednesday for pre op by 6:30am. Bunches of questions , pee test for pregnancy, odd white dancer tight tights placed on legs, talk to the doctor and the anesthesiologist, then rolled out. I do not remember one thing past that! Whatever went into my IV knocked me out! 8:45am

I woke up in a very bright room with what felt like people yelling at me and others to be woken up. I remember the rows of people , lots of snoring, lots of lights, and having a very hard time trying to wake up and focus. (Recovery Room)12:45 ish

When I actually became aware of my surroundings I found myself surrounded by a team of people hooking me up to a multitude of different machines and monitors. I also noticed that I was having problems seeing out of my right eye.
After getting settled into my room in Neura Trauma, I found I was connected via catheter, IV, blood pressure monitor, oxygen monitor and heart monitors.
My head was pounding but I couldn’t stop rubbing my eye. I was to find out later that my cornea was scratched during surgery…so once we got the antibiotics, and salve in…and a patch this issue became settled and I realized that my head was Throbbing out of control. Most of the first day post surgery is pretty much a blur.
I guess I was all settled in my room and my mom and husband came anxiously back to see me somewhere in the time frame of post 2:pm. They told me what the surgeon had told them, met the nurses, unpacked my bags, and saw my serpentine shaped staple scar going down my head.
I learned from the neurosurgeon that veins had been found entangled Around the lower arm of the trigeminal nerve, these have since been released and untangled and a tiny piece of Teflon was placed in between.

I was to continue taking two percocets as needed for pain, and they would also be giving me tegretol, and steroids for the swelling. I am gonna say maybe two or three hours later I started experiencing some serious head pain! Now I am not new to head pain, but this got very overwhelming very quickly! I ended up with an IV in where morphine was delivered to me very hour. This along with the percocets being raised to three pills now every four hours. I was in and out of it , woke up later that night starving … They wanted to feed me jello and broth… Neither which I eat (vegetarian) and for whatever reasons I began crying immediately! I ended up with mashed potatoes and peas and slept about an hour to two hours at a time throughout the night!

Thursday…still huge amounts of pain, both inside the head, and at the incision, oh the neck muscles were killing me! Had a couple of melt downs, but pt came and got me out of bed in the afternoon, and this really made me feel so much better! I continued to do lots of monitored walking throughout the night…even packed my bags before I went to bed so I could be ready to leave Friday if they gave me the ok!

Friday…feeling horrible again, not the tn head pain, but my entire neck, ear, cheeck and face on the left side is sooooo swollen…even my eye is puffy! Can’t hear out of my left ear…can barely swallow. All my vitals are ok. Doctors sanid that at 72 hours post surgery can be the biggest swelling. Continued with Percocet and morphine until 1:00 where I went to physical and occupational therapy…no problem! However due to the amount of swelling they are keeping me again. Stopped morphine. And at 4:00 today I was moved from Neura Trauma to a regular hospital room. Pain is down, swelling still there…I am hanging at about a 4 in pain. I tell what I won’t do tonight… I will NOT sleep with my head unelevnated like I did last night , and I will not over walk! It is amazing how quickly I tire out, I heard it said up on the neuro floor like this… Doing a crossword puzzle after a craniotomy is like jogging on a sprained ankle…a little bit goes a long way!

Friday …now. I am in my new room, major downgrade from my neuro trauma room…it’s like the ghetto here, people out talking in the halls… I was spoiled up in the trauma unit! And my food is missing!!!

Yvette, you are so brave and kind coming back onto site to tell us your MVd story.
Now please rest and let yourself heal. Hope that head pain goes away soon. Take care x

Thank your for sharing your MVD experience, like Jackie said, "rest and let yourself heal". But don't forget about keeping us posted on how your are doing when you get home. God bless you

I am glad you posted your progress on the site. Good luck and best wishes for a pain free recovery. I hope venting on here has helped in the healing process!

Thanks so much for taking the time to share your story. It helps more than you know. Now people who are thinking about mvd or want to know what to expect have a frame of reference from someone who actually is in the experience of it fresh. It's wonderful and I wish you a speedy recovery, no more headaches. Hope the swelling is down. Love Julie

Mine was in October -- brings back memories the way you describe it! Felt like 13 elephants kicking my head!

It gets better and the hearing does come back for over 95%!

Can't wait till another update!

July 14… Still in the hospital! Woke up to go to the bathroom at 4am and fluid gushed out of my nose. Since then it has been trckling down the back of my throat. Doctor ordered a cat scan. Had that done two hours ago… Waiting to see if I have a leak

Uh oh! please update us and make sure you get treated for this! Big ((hugs))

Hi Yvette, I read one a post of one of the ladies who had and MVD who said that she was told not to lay down flat on the bed after the MVD, not even with a pillow because the insition would starte discharging, instead to seat up on the bed as much as possible, even during sleep. Try that, hopefully it would stop it or at least slow it down. Keep in touch, God bless

Yvette said:

July 14.... Still in the hospital! Woke up to go to the bathroom at 4am and fluid gushed out of my nose. Since then it has been trckling down the back of my throat. Doctor ordered a cat scan. Had that done two hours ago.... Waiting to see if I have a leak

Ist day at home didn’t go so well , having lots of nasal drainage … And very stupidly I blew my nose … This sent me into a horrible series of events full of 10+ pain and a seizure like thing and lots of screaming … Took four Percocet, a tegretol and a Xanax and cried begging my mom not to call 911. Passed out after about thirty minutes and slept for next four hours! Never blow nose!

Hang in there! I hope your recovery goes well :)

Thanks for posting such a detailed experience. It's really helpful to learn what it's like.

Ouch :( The doctors should have told you not to blow your nose :/

Stay strong! Take care!


Yvette said:

Ist day at home didn't go so well , having lots of nasal drainage ... And very stupidly I blew my nose .... This sent me into a horrible series of events full of 10+ pain and a seizure like thing and lots of screaming .... Took four Percocet, a tegretol and a Xanax and cried begging my mom not to call 911. Passed out after about thirty minutes and slept for next four hours! Never blow nose!