As I’ve lurked and skulked about this site, I appreciate the support, wisdom and camaraderie from each member. I had my second visit with neurosurgeon today and decided that MVD is the best option for me. In reading the posts, the admonishments to wait scared me a bit, however to live with this pain any longer than necessary scares me even more. For me the bottom line rests in taking action to restore the quality of my life. First things first. Once the TN is addressed, the doctors will then address the occipital neuralgia.
The pain, the medications, the side effects, the breakdown in personal/professional relationships and a host of other issues associated with TN, pervasively and profoundly compromise the quality of my life. After doing the research and weighing the pros and cons of surgery, the positives significantly outweigh the negatives.
Interestingly, after watching the videos, reading the journals and other resource materials, the thing that disturbs me the most about the procedure is the fact that the stabilizer used to hold my head in place during the surgery is secured by staples…Now go figure that one out… Maybe my adult son is right when he jokingly proclaimed that I have “snakes on the brain”.
I am laughing right now, because what I didn’t tell him is I hear crickets chirping and wind chimes tinkling in my ears where none exist… Oh my, the insanity of this disorder!
My experience with TN is a hot mess from hell and I am hopeful that this surgery will change the tide of my life experience. There is much to be done over the course of the next two weeks, but I am very grateful and appreciative for the support of all who make this group a reality. Without all of you, I am not sure that I could make this decision with such confidence. I know that you all will be here even when my nerves aren’t so steely and for that fact I am even more grateful.
I wrote this quote several years ago; "Life is like eating cotton candy on a rainy day. It is a sweet and delightful treat for the senses. But if it is not enjoyed in the moment of its intention, it will quickly disappear right before your eyes."
Today, I set my intention.I am ready to enjoy my cotton candy! As I embark on this experience, I will share my journey with each of you.
Peace and tenderness sent your way,
Aleshia
Dear Aleshia,
I greatly admire your strength in making the descision to go through with this surgery.I have no doubt that you have done your homework well and that you rest assured that this is the best course of action for you. You are a beautiful and articulate woman and deserve to be at the fair eating cotton candy every day!
I know what you mean about being queasy about certain things…after all I passed out when I had my ears pierced!
Where are you having your surgery done? Please keep on touch and as others have done, it would be great if family or friend could log in here to let us know how you are doing.Know that we will all be cheering you on and are with you every step of the way!
take good care…Judy
Thank you each for your support and prayers. In response to Judy’s question, the procedure is scheduled at Allegheny General Hospital in Pittsburgh Pennsylvania. Doctors Peter Jannetta and Raymond Sekula are in charge of my surgery. Anyone who knows me will tell you, my relationship with doctors is less than stellar. However, in an era in which the medical community is often indifferent and insensitive, I find this group a polar opposite. From my initial conversations with the office nurse, to my meetings with the doctors, warmth, authenticity, compassion, wisdom, professional confidence and human compassion resonate! Like the commercial for ALL State insurance, "I’m in good hands!”
Maeve, you are right, it is an incredible relief. It is providence! Approximately three years, before I knew what TN is, while waiting to get my mammogram, a young woman told me about this “Dr. Jannetta”, who relieved her mother from the worst headaches ever. I committed the name to memory. When my pcp provided me with a list of neurosurgeons, she couldn’t remember Dr. Jannetta’s name, but thankfully I did, and here we are.
Ro, this group is filled with strong women (and men). I am inspired to go forward because of each of you. Angels surrounds us always. They walk in our midst. Attitude is everything! Thank you for sharing the beautiful image.
My husband agrees to keep you all posted. In the meantime, in the days prior to surgery I will make every effort to share my thoughts and feelings. Despite the snow, the treacherous weather outside and a significant amount of break through pain, today is a good day. I am still confident I made the right decision,
Hi Aleshia,
I just went through the MVD 12/15 and am doing very well. I will be thinking of you in the weeks ahead. Have a speedy recovery!
Kimberley
Kim, Thank you so much! I am glad you are doing well. It gives me a lot of hope!
Aleshia