Hey all,
Firstly, Sorry I’ve not been around much the past few days. My TN has been pretty screwy, and it was that time of the month you know. During my monthly sessions like that I have Endometriosis - causing me extreme abdominal pain, back pain & leg pain as well. Then, when the temporary Trig nerve block I had wore off, I was getting some major attacks on both sides of my face.
The past two days I’ve spent in and out of states of sleep and pain so haven’t achieved much, during the pain states I’d reach a state of exhaustion and just crash out the moment the pain relented a little - waking to find the pain waiting for me for the next round of our bout. It became a seemingly unending series of events. The all over weakness I was experiencing between sleep sessions was astonishing even to me. It was what caused me to fall asleep at most every few hours of being awake.
Well, now the TN has relented mostly for the past 8 hours. This has been good, with the exception of the lightning fast electrical zaps I’ve experienced in virtually every area the Trig nerve travels my face. Every branch, seemingly every spot along each branch - probably not helped by the outside temperature reaching 46 C / 115 F before the electrical storm hit us. We’re to expect the rest of the week like this. Extreme heat, storms and hot northerly winds. Sounds like fun.
In less than 4 hours I’ll get a wake up call to organise a tow truck to take my broken down car to my family mechanic. This mechanic is an hours drive from my home. The closer mechanics in my country town are not so reliable - one just serviced my ride on mower for near to $500… So he’s not getting my car. But the mechanic wants my car there by 8 am. So I get a wake up call at 6 am ~ and well obviously, I’m not sleeping. Even if I do get to sleep, I’m not gonna get much. So, the plan is my Mum has left her car at the family mechanics and my brother drove her home - they live close by this mechanic. So I go with the tow truck, drop off my car and take my Mum’s car back home here as she doesn’t need her car for a couple of days - I’ve already been without my car for 5 days now. It broke down last Thursday night, Australian EST.
I was supposed to take my car in the day before yesterday. It was the morning after my Mum stayed the night and I’d had a bad night. I woke early, and as I sat up to get out of bed for a drink of water - the pain hit me hard. I did not think I’d get back to sleep after that - but within an hour of the attack starting, I began to feel rather woozy and told my Mum I had to go lie down before we left, and no I didn’t want breakfast. I lay down to just still my dizzy head as I was still in pain. Mum brought me my heat pack and left me there. We were to leave in 30 minutes. 2 hours later, Mum came in to wake me saying she didn’t think I should drive in today. I had agreed with her as even as she woke me, the pain hit again and so did the repeat of the dizzy spell. I phoned the mechanic with difficulty and changed the day I was to take the car in till today - in a few hours time now…
I’m tired and pain free for now - but once again unable to sleep. I think this time it relates to a combination of insomnia, missed meds earlier last night and the fact that my body made me sleep so much for the past few days - now it feels maybe I’ve had too much sleep… I don’t know… I’ve just left for rambling land maybe :-).
Anyways, I hope everyone’s doing alright - and I’ll be back online and back to myself, whatever that is anymore and get to catch up and chat with y’all soon. Right now, I need to go lie in my bed and hope that I fall asleep… Wish me luck!
Cheers ~ Kerry.
I’m in the same boat right now, but luckily have no commitments as I’m booked off work for the next 2 weeks.