so doctors got me on 1200mg of carb and now also bactrim, I'm always dizzy and zombie like. The meds help but the pain is still there. Do I have to live a life on puree food and suffer? I see the doctor soon I'm going to push for surgery and adivce?
That was the side effect that I often had with my medications. What surgery are the doctors wanting to do? The surgeries work for some people. I would just make sure the doctor has performed these surgeries before. I know that sometimes it takes over a month or more for your body to adjust to the medications and possibly longer depending on your body and weight.
I can only tell you some of what I learned in the study of TN online and in real time
If you mean MVD surgery -- your chances of success are slightly higher if you have TN1 -- zap vs. burn
I had my MVD because I cannot function as an intelligent life form on Trileptal -- Neurotin made me dizzy and Lyrica made me stoned
You should - if not already consider owning the book "Striking Back" -- there are things you can do in conjunction with meds / surgery
The book is handy because it leads you to look back on the net
to see what others have had success with - since there are so many here -- I kept notes for myself and for family and for doctors -- hard to do on that drug - so I had it lowered so that I could get from diagosis to brain surgery within a year - I won't really know if this 10% pain strikes will be gone when the nerve has healed for a year -- no guarantees - knowldege is power!
i does take time it was over a month before i started to feel relief on my meds !
It took me about 6 weeks to feel relief fully. I remember how hard the wait was. Even a few days of severe pain seems like an eternity. Let us know how you progress please.