I'm in a lot of agonising pain now. It's been going ALL day and now it's so much worse. I've taken all my meds, and took my pain meds - nothing.
Just took another lot of meds and tried to lay down to go to sleep. Because pain started today in the back of my head and neck, and tonight my face joined in - it's after midnight here in Australia and I'm exhausted and haven't felt pain this bad in months. I tried to lay my head on a pillow and could've screamed with the contact. This pain now is 360 degrees around my head. I don't know what to do in truth so I'm off to the ER, I have no choice now, this is getting worse by the minute. Wish me well.
I feel for you I have just spent the most terrible night of pain. Mine went from my cheek and jaw into my deaf ear than up into my head it was just as if fireworks were exploding at the top of my head. My morphine did not work, I lay in bed with tears streaming down my face. This is so different to before I had my MVD which caused lost of hearing. Then I used to get pains shooting through my eye into my head. Now I have a dullache in my cheek and jaw all the time, it flares up every so often, but never as bad as last night. There is no way I could have driven anywhere either. Should be seeing consultant at Burton hospital on Monday 20th. How I feel for you, what do we do when the pain gets this bad Margaret
Hi Kerry
So sorry that your in so much pain now. This condition is truly awful and seems all the worst at night when all you want to do is sleep and get some relief.
If you do decide to go to the ER I hope they can help you out.
Take care
Una
thank you all for your positive thoughts and wishes. Thank you Margaret, Una, Sara and Liz, I went to the ER and they gave me toradol again - came home a few hours ago feeling that the pain was gone, but still lurking in the background, and as I'd not slept all of last night, I lay down to get some much needed rest. Unfortunately, I've woken up now with the pain sharp, electrical and the switch left in the on position. Instead of a single zap, zap, zap - it is now just ON constantly electrical.
Coincidence or not, but now there is a large thunderstorm outside - the sky is becoming very dark and the thunder is also almost constant.
But so, the agony is back and I'm once more in the grip of a major attack :-( and they just now issued a storm warning for my area. After the storm is already visible.
As for my pain now I don't know what to do. It's too soon to be given toradol again - what can they do to stop or interrupt this pain - it's once again at it's worst ever and it is BILATERAL pain....
This thunderstorm will hit directly overhead of my home.
Awfully enough, the closer the storm gets, the more instensity develops in my already agonising pain :-( I just want to scream with the pain I've got now.
The thunderstorm has gone and power to my house has returned.
The level of pain has also reduced, but I am still in a lot of pain now. What do I do, I know what this is as I've been through this before. It just stays and doesn't go away at all for days - it is almost atypical in that it's so continuous when it starts and continues with the worst possible of pain, it's TN1 pain non-stop .................
It's what made me so desperate at the beginning of this year to get some procedure done to stop the pain. I'm on a waiting list for the same procedure I had done then to get done again - but when I saw the doctor on November 5th, he assured me he'd have me in the theatre within 2 weeks. Well that was 5 weeks ago and his office are not returning my calls. I've called every 2nd day for a week now and keep getting the answering machine.
My dogs are worried about me, even my overexuberant border collie who only ever seems to want to play her own kind of games when I'm not interacting with her, is now staying within 10 feet of me at all times.
Sorry - can't let it out aloud, that would hurt more. I'm going back to the hospital ER again soon, this pain is overwhelming me and it's exhausting in it's intensity - yet I have touch triggers today again 360 degrees around my head, so I can't lie down if I wanted to. I can't keep this up. The hospital have to be able to help me. I can't stand this level of pain over this much time. It's back up to the 15 out of 10 and higher, the pains referring out of my head and into my chest and breastbone.
I'm going back to the ER after I feed my dogs, I hope everyone else is having a better day.
I'm writing to let you all know I'm 98% pain free today. For now. :-) enjoying some breakfast here down under while I can - thank you for all your kind thoughts...
Kerry, honey, I am so sorry to hear what you are going through, and it infuriates me that they don't give you anything stronger than toradol. Please rest as easy as you can, and maybe ask for a sedative of some sort from them, so at least you can sleep through part of it. I really hate to hear this, and I would give anything to help.