I can definitely relate. I live with my mom... She doesn't have tn thankfully, but she does have other health stuff going on (fibro, interstitial cystitis...to name only a couple..). My mom is my only support other than online support. It's really hard for me. I don't have any friends around. So most days, I only talk to my mom...Everyone vanished once I got diagnosed w/ fibromyalgia in Sept... I find myself shutting down emotionally.. I just don't know what to do with myself. I am a firm believer in the Lord and know there is a very big plan for this... It's just the day to day stuff that really gets me down. I am so exhausted. I can't even get to the dishes. Just gotta take it one day at a time, and do the best I can.. I don't work either--not enough spoons to work (Dana mentioned the spoon theory and it is a great read if you haven't read it yet).. I need to start trying to do different things. I am thinking about trying to make myself sit outside a little bit everyday or something to keep me occupied and my spirit lifted up. Maybe, try to walk outside for a few when my body lets me. Listen to music when I can. Open the blinds to let sun shine in when I can handle the bright sun.. Figure out how to make the most of it---be more in the Word--use this time to listen to my Heavenly Father, pray more, and make most of the time I do have and try not to think about the emotional support I don't have..
The lack of emotional support or human contact drives me nuts, but there just isn't anything I can do about it. (except cry,cry, and cry) I have tried to reach out to family members. I have tried to reach out to friends, and even try to make new ones. Only support I can find is my mom and online friends. It is much better than what others may have. I have a warm bed, roof over my head, meds to help me some, food, and trying to just be more positive (which is *alot* more easier said than done...). Maybe, writing this will help me not dwell on what I don't have..
You most definitely are NOT alone! Sorry you have to go through this too..
I understand your frustration and loneliness. You have all of us on here. If only we all lived close to each other and could visit one another. I really wish that!
have faith and lean on us. I am a very stubborn "I can get through this myself" type guy and it has been so hard to learn that this boulder is to heavy for you to carry alone. Further it is too heavy for just one or two folks to help, you will need a small army of folks, but luckily you have found them. Meanwhile I would try to help more, but Im ready to curl up on the floor and keep wishing for the sun to come up so I can stop pretending that I might be able to sleep through this feeling of an ice pick through my temple...
Thank you so much. You guys make me cry, Have taken in all of our pain. I feel alone here, I live in Brooklyn NY. Know one can ever imagine the daily pain we all suffer. I wouldn't wish it to my worst enemy.
mglen32 said:
Lauren,
I understand your frustration and loneliness. You have all of us on here. If only we all lived close to each other and could visit one another. I really wish that!
Hi, you are not alone. You have us ! We know how you feel and would like to share with you any information that is helpful. Come to this site to talk and vent your frustration.
I try to do some exercise whenever I can. Every Monday, I will plan what need to be done in a week. I will think of what I am capable of doing with this illness and try to go back to work. Most importantly , I manage my pain well so it does not bother with my daily life.
Thank you for your reply. You are so blessed to have your pain managed. That is what I am hoping and praying for. All this has just begun for me. I am on Tegretol currently and just hoping I can get to a point that it's pretty manageable. I started doing some yoga and then the pain went to my scalp and it was bad. It's a little better and I should try it again, but I am afraid. UGH! I guess I can try it. Thanks again for writing.
Marla
Seow W said:
Hi, you are not alone. You have us ! We know how you feel and would like to share with you any information that is helpful. Come to this site to talk and vent your frustration.
I try to do some exercise whenever I can. Every Monday, I will plan what need to be done in a week. I will think of what I am capable of doing with this illness and try to go back to work. Most importantly , I manage my pain well so it does not bother with my daily life.
I live alone also and find that Im am totally anti-social when I'm in severe pain. Please no that you're not alone and there are so many people going through the same thing. Just try to keep busy, read, relax, do mild excercise. That sometimes helps.