Its…. Back :(

General
1

The day i feared for almost 2 years has come.
What started with incredible pain on my left side front tooth after a redone root canal on right side inscicor. And left me in constant pain for a full year. Tried gabapenting, amitryptiline, oxycodone and more with little result, the best part was the oxycodone that knocked me out in the beginning… i had all but given up, i was crying to my doctor like a little child and kept talking about suicide.. Then i started playing wow and eating shitloads of candy, especially salty licorice, and the kept the pain in check. It was definitely there but i think i managed to ignore it for a while.

But i ended up gaining 80kg and was on the brink of death, my heartrate when putting on pants in the morning was around 150-160, resting heart rate was 115.

My wifes son took me out to play disc golf and i was hooked, like it was amazingly fun.

I stopped eating candy and started playing disc golf 2-4 hours EVERY day for about 1 year and 3 months, tooth pain was almost gone, i almost never had any constant pain but the tooth was sensitive at some points but it usually went away on its own.

All in all, i would say i was pain free and med free for 15 months.

2 weeks ago i hurt my neck, it radiates heavily to my left arm and doctors (and chatgpt :slight_smile: ) is concinced it is nerve pain. I had an xray done which showed no skeletal dmg. But i had some wear damage and ”minor tightening” around the nerve roots. Now they are saying i have an inflamation in the neck that is causing it to be too tight and thus causing the intense neck pain.

I buy that, and i am resting to try to get that pain to go away, hopefully will. But now during resting i am starting to feel the left front tooth more and more every day, which is putting my anxiety through the roof.

I am right back at the point of having dark thoughts and sweating excessively..

Dunno what i wanted except to vent, i really hoped this wouldnt happen :frowning:

1 Like
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And don’t we all. When we find something that ‘works’ for us, we hope it never ends. But for some, we aren’t that lucky. Dental was identified as an issue for me too. In the first instance they exacted all of my top teeth. It wasn’t my teeth. The pain continued. They trialled me on all sorts of medications. I was UP, I was down (heck, with some of them I was sideways) and some side effects are just nasty. Fast forward a few years and again dental was identified as the cause of an infection, they removed all of my lower teeth. Again the issue wasn’t my teeth but rather a severe throat infection. Tsk. The dr says “Well, you don’t have to worry about your teeth anymore…” Yea, because you ripped them all out. Not happy.

Now, you state that there is muscle tension. One treatment I was given was Botox and, if indeed, the cause of your issues is muscle tension Botox may assist. Botox relaxes the muscles around the vicinity and thus ‘should’ reduce the tension. In my case they did find another cause for my ongoing pain, a nasty growing in my head. But if you are going through a process of elimination, I’d suggest talking to your medical team about whether Botox maybe an option.

Merl from the Modsupport Team

3

Jeesh. Your story sounds like medieval medicine, especially extracting all your teeth?!?!?

You must have or had an MRI early on for tumor or cyst detection. My trigeminal pain was caused by a epidermoid cyst in the lower pons area of my brain. I had to have the cyst debunked from that area of my brain and that took care of the trigeminal pain for good.

Teeth pain is after misdiagnosed as the “root” cause but that is bunk. Trigeminal nerve pain can also be caused by a blood vessel impinging on the trigeminal nerve. That also happened to me 15 years after the cyst but on the other side of my brain. Then I had a MVD microvascular decompression. I couldn’t handle all the meds - gabapentin and carbamazapine. So I had the MVD. I have some neuropathy around my right eye but it is not pain just tingliness - just a very minor nuisance.

I hope you can find the right solution to your problem.

God bless you and pray lots.

1 Like
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Hey @Michael6
I think that when there’s a diagnosed cause, treatment options can be more clearly defined. Medications can mask it, botox can vary the pain messages, but when that root cause isn’t identified and no treatment is clearly defined, it really can turn into the medicos using ‘trial and error’ to find what works. TN and it’s causes can be never ending roundabout and it seems every medico seems to have their own theories on a cause and treatment options.

I’m happy for you having found a cause. That’s a HUGE part of the journey and long may it last.

Merl from the Modsupport Team

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“ took me out to play disc golf and i was hooked, like it was amazingly fun “.

I suffered with Trigeminal Neuralgia for years. I found out this : when I was outside actually doing something, anything, involving activity and concentration I never had a single episode. The episodes always occured when I was idle, doing nothing. I had a lot of stress in my life, most of it kept inside, because no one I knew - friends or relatives - had no idea anything was wrong. All they saw was hmmmm, you look good, pass the salt please. Activity, physical activity, was definitely a big help.