I was diagnosed with TN 1 in June, 2011, (jaw on the left side) then only seven months later it hit me so hard on the other side (same kind of pain). My neurologist confirmed it as bilateral TN 1. At first I could easily eat on my right side (well, not so easily), but now I, of course, have been scared to death to chew on my right side also. That left me with only the choice of pureeing my food. I was a thin person to start out, and a very big problem I also have is high cholesterol - a family trait. I have lost nearly 20 pounds since this began. I search the internet for foods for people who cannot chew and mostly I get foods that would hurt my cholesterol.
Now I live on non-fat yogurt, Ensure protein shakes (as I have read whey protein shakes are constipating and, unfortunately, that is another problem of mine), chicken chopped very small mixed with pureed cauliflower, pureed zuchinni (sorry, I've spelled that wrong), baked potatoes with greek yogurt as a topping, occasional salmon, egg whites because of my cholesterol, and noodles.
I didn't have very many wrinkles before, but I have way more now - my face has gotten so thin. My arms are extremely saggy (it's very hard to exercise when you are constantly afraid of pain like this). I used to be told how pretty I am - not any more.
How does every one else eat?? Have you all with pain in your jaws on both sides lost weight? Please, I need help!