TN sure takes control over ur life no matter how hard u try to fight it…I really dont know how much longer i can fight this.Having a bad few days and meds aint working once again.DOc increased my meds and i have to increase them again on monday and if that dont work by the 26 of this month he is finally goin to refer me to a neurolisgist.Which by the way takes up to 9 months to see.HOW in the heck can i last 9 months with this pain. I dont know what to do i just want this pain to go away plssssssssssssssss.
Feel so alone.Boyfriends answer take ur pills like i didnt think of that.
That’s insane that he hasn’t already referred you to a neurologist. Keep complaining to him even if the med increase helps. The ball needs to get rolling for you and the squeaky wheel gets the grease. I’m thinking about you and praying for you Marina. Hang in there. Don’t give up. Keep pushing until you get the help you need. I know it’s hard. If you don’t have the strength to explain, just sob over the phone to the receptionist or sob in the office with the nurse and the doctor. If you can’t talk, plead and explain anymore, just give it up and CRY! Maybe they will realize your pain. Hang in there. You can do it.
Hi Marina
If your pain gets to the point where you just cant take it anymore(which sounds like your allready there) another option is to go to your nearest emergency and demand they give you a injection.They can administer Torodol its not a long term fix but it will certainly help for 12 hours.I know its not much but any bit helps.I hope you can get in sooner to see a neuro 9 months seems like a life time when you have this dreadful pain.Wishing your pain subsides and better days ahead…Godbless 
Brian
Marina,
I am sorry that you will have to wait for so long. I hope your pain will get better but if it does, still insist you see a neurologist.
Liz
Marina,
Sorry to hear your having it so bad. I read your profile and maybe this will be helpful for you: Gabapentin is OK to increase doses. Discuss with your Dr. . I’m taking 1800mg daily and have been advised that if I need more take it. I’m also taking tegritol - 600mg, Trileptol - 300mg, and baclofen. I attribute this mix to helping me most as I’ve taken each of these individually and have had severe pain. Combined they are doing well. Maybe just a thought for you…
You are being thought of and prayed for. I hope that is helpful to you.
Hi Marina
Sorry to hear that you’re having a bad time.
Try telling you’re doc exactly how you feel and see if they’re is any way to get you’re appointment pushed foward.
I really hope that when you increase your meds, you find some relief.
Take care.
Una
Marina, don’t back down. Keep asking you doctor for an appointment. Contact the neuro yourself and insist on the earliest appointment, get on waiting list for cancellations. Search for a new doctor the understands the pain of TN. I had only mimimal relief from meds. I never stayed on anything more thana couple of days before it had to be increased or another drug added to it. I had Gamma Knife a week and half ago and truly feel like new person. When you do see a neuro ask about it. Where do you live?
You will be in my thoughts and prayers. Hang in there sweetie!
Thanks all for ur replys and ill well try and answe everyones comments.Forgive me if i dont cuz im having a bad night.IM now taking 100 mg topitamate 900 gabapentin and tylenol 3s…Im still in unbareable pain but get a few hrs here and there of managable pain.Side affects of these meds are something else.Saw my doctor again today.Told me my speech is alittle off and my eyes looks glossy and my blance is off and told me that the side affect can get worst.Thse pills have change me.I aint myself any more.I use to be so happy and cheerful.always with a smile on my face now it seems like im living in a cloud(if that makes since)I have to say thou TN really got the best of me today because of the side effects and the pain im in my doctor feels that its best that i stop working for now.Breaks my heart because im a nurse that looks after the elderly and love my job very much.Dont get me wrong i understand that its the right choice but is just so pissed off at myself for losing this battle and letting TN win.
Told my doctor today that i cant wait 9 months to see a neuro due to these pills and the pain im in and he said he well see if there is a way he can get me in sooner.( I have to go back on monday to let him now how my pain is and how my side affects of the meds are)
Sharon i live in Sydney Novia Scotia…
Thanks again everyone for ur replys and im glad i know i have friends out there who know whatim goin throu…Hope ur all having a pain free day