I don’t know what to do at this point, and am at the end of my rope. For the last three weeks the pain has become horrorific. This last week has included about with screaming for mercy and most the time in tears. I can’t take this at all any more, and having awful dark thoughts because the pain is just so bad. I have spoken with the pain doctor and his nurses several times, with the only answer of anything other than tramadol is inappropriate. That would be great if I got any relief from tramadol but I don’t. I don’t want to go to the er as the last time the doctor literally told me I’m not his problem and sent me on my way. At this point I’m not talk nor eating because of the massive pain it will cause. This just feel inhuman to me. All I want is relief from pain, just even a small window. I’m not even sure what to do at this point.
I know hang in there sounds really lame but sometimes that is the only thing I try and think of when my episodes get that bad. During those times my stronger meds don't even work. When I get that much pain, I close my eyes breath n through my nose and out through my mouth while mentally telling myself what doesn't kill me makes me stronger. I know there are times when I think I just want to cut my face off. There are times when I think about the dark side of things and wanting the pain to just end. I always tell myself that I cannot be that selfish. It may end my pain but if I was gone I would be creating a pain for my family and friends that has no cure either. I am hoping someday that someone will come up with something successful for all of us and until then, I have to try and hang on. During those times I take my meds, do my breathing exercises and hope that the meds will knock me out for a short period of time. I know this sounds lame but I have a teddy bear that I squeeze when I am in pain. It keeps me from waking up my husband at night, gives me something to cry into and try to distract myself from the pain. My dog also follows me wherever I go when I am in a lot of pain. I don't know how he does, but he does. He tries his best to comfort me by laying his head in my lap or next to my head. Petting him can be quite soothing, too. I don't know if any these things can help you but hopefully something will. Know that you are not alone and we all go through this and do understand. Come and talk anytime.
I think I sound like a broken record - have you tried any type of lidocaine RX????
Lifesaver for some!
Therapist or support group near you?
We are here - but sometimes even a small dose of antidepressant can change the seratonin and have more good days than usual.
Keep Posting!
Oh Kari, I'm so sorry you're hurting....can't tell you how much I empathize with you. You're going to make it through this and there will be good days ahead. Please feel free to write to me if you need someone who understands. Wish I could magically stop your pain. You'll be in my thoughts and prayers, and seriously, please message me if you need to vent.
Hugs,
Vicki
Take Kc Dancer's suggestion. Go to the drugstore and ask for Lidocaine cream or gel...it really does help with the pain. May lessen it til you can get into a dr. Lauren
Thanks y’all. I hate this so much right now.
Today I saw my general doctor and let him know what was going on. This feels beyond stupid and cruel. My general doctor was concern but can’t really write me any prescriptions as I’m on a contract with damn pain doctor who’s only advice was go to the er. Really?!?! That is the one place I definitely do not want to go. As it’s a guessing ge which doctor I’ll get and if they will do anything for the pain.
As for the lidocaine, I did get a scrip for that be its like the devil. It takes the horrible stabbing screw driver pain away a little but in return I get those horrible electric shocking pains. I want sleep, eat, talking and function not stay in the closet or the bed all day.
awwww - The ONE time I went to ER - I got Benedryl mixed with dillauded in IV and worked for 4 hours --
Well I (or should I say we, my husband and I) saw the pain doctor today. This time I got him to pay attention. He up a few of my medications and gave few new ones. One of theses is a compound of lidocaine and something that started with a k (?) for a cream. Now it’s just finding a compounding place to get this filled. He also gave another prescription, but the pharmacy found I most likely can not take it because it is in a group of drugs that Im allergic to. It is frustrating with medications right now as I’m running into a wall of can’t take because of allergies or just can not tolerate. It just makes that much more frustrating to me and the damn doctors on trying to treat my stupid damn tn.
On a second note I am so glad I kept my emails and voice mails from one of the nurses at his practice. She had insinuated to me that I was nothing more than a drug seeker. I let the doctor read and listen to these at my visit. I’m hoping that this issue will now be taken care of. My blood just boils still from it. I really don’t think a drug seeker would go through half the trouble I have gone through at this point to get “drugs”. I also wrote a pretty long letter for the doctor letting him know how inappropriate this is/was and also this nurses treatment towards me can be considered medical malpractice.
Thanks again y’all for listening to and offering your advice on this. Hopefully with adjustments to my medicine the pain will quite down very soon.
Kari, WTG on standing up for yourself. Be patient and give the new meds time to work. I know how hard it is when you have allergies to meds. Feel well soon hun and again good job taking care of that rude and insulting nurse...........Lauren (Big Feel Better Soon Hug)
I have only been experiencing TN for a month or so now, so I am relatively new to this all. I have made one visit to the ER, and I must say that except for the time it took to see a doctor, I was pretty happy with the service. On top of my prescribed medication, they also gave me Tramadol and some Diazampam (?) to get me through the night...it worked.
Unfortunately I have since had an allergic reaction to Tramadol so that is out. I suffer the most at night and pretty much sit on the couch all night alone with the pain for company...I have not slept in the same bed as my wife for 3 weeks now. I see the doctor again tomorrow so will see what he comes up with.