Hi Wendy, sorry to hear you have not had a diagnoses yet, hang on in there, neuro conditions are so difficult to diagnose as there are so many variations. Your symptoms sound very similar to mine. Have you had a lumbar puncture to test for CIDP? Take care
I have not had that test, the one thing that scares me more than anything is a lumbar puncture...it will be a last ditch resort, but my neurologists both think its a waste of time, so no way...I am hoping I have an answer soon, I have another MRI on saturday and just had another EMG on wednesday....thanks for the suggestions though
Wendy
tech42 said:
Hi Wendy, sorry to hear you have not had a diagnoses yet, hang on in there, neuro conditions are so difficult to diagnose as there are so many variations. Your symptoms sound very similar to mine. Have you had a lumbar puncture to test for CIDP? Take care
It isn’t a nice thing to have done, but it wasn’t as bad as is imagined either though. The first part of the diagnosis was with an mri and cidp was suspected but at this point I didn’t have any of the usual symptoms. Next I had nerve conduction studies which showed slow responses, then the lumbar puncture was how it was finally confirmed. I don’t have any reflexes in my lower body either which is another sign. Hope you get a diagnosis very soon, meanwhile stay positive. X