Hi Guys,
I am new. I guess I will explain how I made my way here …
I am a 28 year old gal’, living in Sydney, Australia. I have a wonderful husband, of about 2 months - and a Jack Russell who we adore!
Anyhoodle, I have a long and complicated Neurological back ground. At around the age of 17, I started to experience some very strange things. Sensations and feelings that we just SO darn scary!
I was told for about 8 years I had ‘emotional problems’ and to see a shrink. Until I had a tonic colonic seizure! At that point, I decided enough is enough … and we started up Neurological testing again. Long story short - I was treated like dog poo by three Neurologists. One actually told me to ‘get over it’. Nice, huh?
At this stage (about 4 - 5 years ago), I was to sick to work … to sick and scared to even pick myself up off the lounge to go to the bathroom. I was a mess.
It ended up being, a really nice local GP … who put up with me … constantly coming to see him. He ran every test he could … talked and talked to me, eventually he had the bright idea to try me on some anti-migraine medication. Two weeks later, I was a new girl. 11 years of suffering … and I was better. So we decided it must be some really rare form of Migraine Variants that doesn’t include an actual headache.
I had a really big fall when I was little. I fell off a flight of stairs on to concrete. We have a suspicion that this might amount to my problems.
Moving right along … lol
About four months … my right ear started off feeling a bit funny. Full, if anything. I have also been getting pulsital tinnitus in the right ear. I went to see the local GP’s twice for it. They said it was a bit of glue ear and will heal.
Then … one afternoon … wahmooooooooooo … it started off like a headache … I was driving home from work at dusk, the headlights from on coming cars distressed me. I had pain behind my right eye. The top of my gum (on the right side) ached, it felt as though my teeth hurt to (although if I touched any point in my mouth, it didn’t hurt). There was a deep deep pain in my right ear. It got worse and worse through the night. The most intense pain I had ever felt. It continued for a few nights and I felt just plain awful through out the days. It then vanished. The night before my wedding, it arked up again. I was a mess, crying and miserable. Luckily I was fine on the wedding day!
After our Honeymoon we returned home and about a week later it was back. It was so bad I took myself of to the Emergency Department. I just wanted to be admitted to the hospital. I couldn’t deal with the pain (which only came / comes at night time). They got me in to see the E.N.T. clinic in a few days. I went … they had a look, my ear looked a bit red and the Dr I saw decided she would give me a go on antibiotics as my ear looked a bit red with a few bubbles behind the ear drum. It took a while to settle down, but settle down it did - I had to take about 2 weeks off work.
Last Sunday, it started again. I have had minor pain every now and then … but Sunday night was a killer. It was all back. Deep pain in my ear, in my gums on the right side, behind my right eye, on the right side of my throat and it felt like my nose was broken. I cant even begin to explain how painful it was.
I made an appointment to see the Dr’s at the hospital again, and I saw them just this Thursday. And my ear looked fine! Totally normal! They have ordered me a MRI and a MRA.
So it seems that I might have just had a small ear infection, that was cleared up with the antibiotics. Needless to say, the pain is still horrific and given there is no infection - I can only assume this maybe neurologically related.
I have found an amazing Chiro who does lots of cranial work. One my first appointment a few weeks ago she told me that my skull is like … shut tight, amongst a multitude of other things! I have been researching and googeling and googeling … and I came across Atypical Trigeminal Neuralgia.
Given my history and symptoms this seems to fit in well with me.
So this is my new, very painful journey. Next stop … MRI and MRA! Ek!
so they keep me pretty busy.