It's been a while since I've posted an update on what has happened since the 'problems' of my MVD surgery on March 22nd,2012. So far, the pain has been pretty costant and I'm still 'detoxing' from steroids from the Dr's attempt to try and find a different reason for the TN. For the past 2 weeks I have been in and out of the hospital with different procedures (many involving putting in multiple PICC lines that leave me look like a addict), as well as yet another failed attempt at a nerve block for the occipital nerve. I don't know why he went after that one, even though I have problems with it, but the TN is still ever present and almost back to full force. Currently, I am in the process of BEGGING my Dr to do the Balloon Compression purely because I have a limited amount of time for disability before I actually get fired from my job. If that happens, I'm up crap creek without a paddle. It's getting aggrivating to the point where I am spiritually,emotionally and physically spent. I know I shouldn't give up on God and the Drs, I'm just at a loss and it really feels like nothing is going in my favor. Today I even tried to wear a hat. Even that was toture while it lasted. It's weird, but it'll be a victory day when I can wear either a ball cap or a headband. It's small, but it's a personal goal that maybe one day I can have something on my head that won't make me want to kill myself (not really). So, for now I'm waiting on the Dr's advice on how to move forward, on my disability to go through and my faith to not faulter. It sounds strange, but I feel like Job and I can't turn my back. Not when I've come this far. One day, I'll wear a headband!
hello Im sorry you are going through all of this. Im new to this site and I see that you have a MVD in March. I had one on Jan of this year and it seemed to work up util about 4 weeks ago when the sharp pain in 2 of the 3 branches on my face and the ach in my ear are all back. there always seems to be a an ach throb in my face. can I ask did yours fail right away or did it work for a bit? Im trying to figure out if im still healing or if it really a failed MVD ??
Any help you can provide would be awesome
I'm still not 100% sure if the surgery completely failed me, but it certainly feels like it's 'effects' are slowly wearing off. Granted, certain aspects of the MVD did work - I can most of the time eat solid foods,brush my teeth and my hair without the worry of long periods of stabbing pain. I was 'pain free' for about 5 weeks before the stabbing returned. I do have earaches as well, but it's not to the point where I really care. I still get the occassional throb on my upper cheekbone, but the majority of the pain is in my right temple. It causes me to still have problems washing my hair, that's why I'm trying to push for the Balloon Compression surgery. Maybe that will silence it. I'm hoping yours gets better. My Dr. perscribed me Keppra 500mg after the surgery to try and calm the nerve,so maybe that might be able to help you. It's helped me for a while,allowing the nerve to 'calm down'. Hope this helps!