How the family and your partner get a long with a love one who has tn.
Its very difficult to explain somebody what happen when you have a flare up. My Boy friend ask should we drive in the ER . No they can do nothing so fare.
ANd how often you say I am fine, and you are in Pain. to Keep up with the family Business. When you feel more like crawl in bed and put the coverts over your head.
I have a hoody where i hide my self. and Leave me alone. till the pain in gone.
Or when you have good days
you dont look like sick. Hahah you like to stuck in my skin if i have one Flare up?
I wear a cotton cap at home and at work when I start feeling the zaps. Lets them know to let me be and it helps me when the a/c comes on which can start some zapping. It's really hard to explain to everyone what it's like so I just kind of hide. Last night we had lightning forming behind the clouds and then bolts would shoot through, I told my husband that's what it feels like most of the time.
Iam From Canada East Coast ( new brunswick), Immigrated from Germany 5 Years ago.
I will ask her about the cream. Out side I wear a hat with a wide rim . so my face is covered. Looks funny but it helps. and Sunglasses . I feel like the Meds makes it more sensetive.
Hugs to you Pia
Kc Dancer Kc said:
Go to google images..... Type in trigeminal neuralgia.....show them these Picts...... It's a start.
Ask your doctor for face cream with ketamine or lidocaine..... Can make life more bearable
Hi Pia, I’m in Alberta and was able to buy a small tube of Emla cream ( it’s a lidocaine mix) at Shoppers Drug mart for about 15$. It worked really well to take the edge off of my pain. I would apply a small amount to my jaw line, cheek and in front of my ear. You don’t need a prescription.
I also used a microwaveable heating pad.
If Its Like the Burning I cool it with a gel cooler:-) tugged on the right side, I have more tingle in my Jar. Sometimes underneath the right Eye, then the Eye starts to tear up. ( are you crying?) What bothered me more is the sensations it comes with the tingle , the numbness, or the feeling the face is falling apart . I have here for pain teva ketorolac (trometh)10mg. for those times I cant stand it.
we find funny ways to stand a part Pain free. You have the same feeling from Dry skin and cant apply any facial cream? I have My painkiller in my purse just in case i have to take it.
I try to hide my pain. or sensation. but sometimes its not good
I got the cream , I used a bit in my facial cream and it worked. having a bad day.
Thanks a lot
Pia Mimi said:
Hi Pia, I'm in Alberta and was able to buy a small tube of Emla cream ( it's a lidocaine mix) at Shoppers Drug mart for about 15$. It worked really well to take the edge off of my pain. I would apply a small amount to my jaw line, cheek and in front of my ear. You don't need a prescription. I also used a microwaveable heating pad.