Has anyone experienced this? Hard to explain but I’ll try. Sometimes when I’m sleeping on one side and move my head to the other side, I suddenly and without warning feel this painful electric shock that starts on the neck and ends on the tip of my head. It’s quick and it leaves me paralyzed for a few seconds. Now it’s more frequent and not only when I’m sleeping but it also happens when I’m showering and when I’m swimming. Now I’m afraid to swim without a boogie board to hang on in case it happens. I went to my doctor and he added my dosage from 300mgs of lyrica to 350mgs. It doesn’t happen anymore except once when I was in bed getting ready to sleep. I guess the meds help.
Hi,
Yes, I get this electric shock daily and often multiple times a day (not when sleeping, however). I also get what feels like an electric drill going through my ear as well as a jackhammer going through my ear and face routinely. If you look up the definition of TN, even Wikipedia, your symptom is there-one of many for the illness.
Best Wishes
Yes I get this pain in my neck, it is daily and I also get it when swimming ( which I love ) it is the only exercise I can really do. Also I get a pain in my throat just one side. Have not told the Doctor because I know he would say it is nothing to do with my TN. Just lately my TN has been awful I am waiting to see a new guy on 20th December ( if it is not put back again ) My deaf ear caused by my failed MVD is also painful and feels full all the time. I seem to be moaning a lot today sorry about that. We are all in pain so you know how I feel. Hope you have a pain free day. Just noticed we have snow to add to the freezing weather we are getting so that’s me housebound. Love Margaret.
Hi Veronica & ladies,
I also get the same pain. The worst part is when it goes through the ear 
I hate IT going through my ear, as then it goes straight through my temple region before going up, sometimes though it lingers in the ear & temple together before it completes it’s run. But for me, it’s not so quick. It can and has continued for a couple of hours at a time. But then for me, it’s been going on for some time now. A couple of years at least.
Then there are days like today, it zigs and zags. A zap here or there. As I write this, I have an electric zap that hasn’t stopped yet, like someones holding the button in the on position, sitting right on the top of my head and it keeps switching sides - though it’s thankfully only on a mild pain “setting” as I like to refer to it as, otherwise I’d be incapacitated…
According to Dr Kenneth Casey (Neurosurgeon) on a video talk of his i watched and uploaded to the video page on this site - it’s still TN, according to 99% of other specialists - it is not TN. I’m pretty darn certain it’s TN myself, what do you ladies think?
I really hope that whatever pain we are feeling and going through is attributed to TN. Otherwise, we have a problem. Bad news is, not knowing how to treat it. That’s my worst fear. So far my lyrica keeps my pain in check. The aura is there but it’s not attacking yet. The painkillers help me get through the day and if not for the painkillers, I will be in bed all day cuz the lyrica makes me feel useless and sleepy.
I’m sorry to hear about your failed MVD. I hope the change of weather doesn’t make your pain worse. I know the cold can affect TN in a big way. Keep warm. Wishing for a pain-free holiday this season…
Margaret Gladys Mills said:
Yes I get this pain in my neck, it is daily and I also get it when swimming ( which I love ) it is the only exercise I can really do. Also I get a pain in my throat just one side. Have not told the Doctor because I know he would say it is nothing to do with my TN. Just lately my TN has been awful I am waiting to see a new guy on 20th December ( if it is not put back again ) My deaf ear caused by my failed MVD is also painful and feels full all the time. I seem to be moaning a lot today sorry about that. We are all in pain so you know how I feel. Hope you have a pain free day. Just noticed we have snow to add to the freezing weather we are getting so that’s me housebound. Love Margaret.