Side effects be damned! If it helps someone with TN PAIN ,it's a godsend in my opinion.It scared me (the feeling it gave me) when i tried one pill.But i will try it again and give it a real trial if my TN ever returns.(praying it doesn't)Don
@LaRae what other options are there when the tricyclic was the best med you've had out of all of them for type 2? I was at 150mg nortriptyline before adding cymbalta because the neuro doesn't know of anything else down that line/family of meds.
Someone not on TN site told me to try effexor but I've never heard of it.
I lowered nortriptyline to 100mg when adding cymbalta due to jerking muscles, now taking 120mg cymbalta and still 100mg nortriptyline. As well as oxycontin and percocet @ age 29. But at least I'm not depressed lol.
I still have a few beers and mmj but know my liver is probably going to kill me.
@ Shindig. All I can say is wow. You must be in so much pain and probably now dealing with tolerance too. My heart goes out to you. I’m no expert especially with the nerve pain. I’m assuming you’ve tried something in the gabapentin, neurontin, lyrica arena. At least they are nerve specific. Plain old narcs never helped me much in the long run. Probably decent adjunctive at this point. Assuming you breathe ok with all that in your system, perhaps Methadone? Just grasping there. Perhaps someone here has tried it. Your young healthy nerves are partially to blame. Bring on the atherosclerosis! How about meditation, prayer and all that alternative stuff? A good friend of mine got a lot of help from Magnesium. Perhaps a naturopath? I wish you the best.
@LaRae, the narcs aren't nearly as good as the nortriptyline had been, it was my drug.
I had a weird reaction from the neurontin, it turned me into a zombie, I just sat on the couch and had no interest in anything, and it was very short term relief, only while adjusting to a new dose, then it would become nearly worthless until I raise again for short relief (3-5 days), upon increasing the dose each time.
Trileptal (oxcarbazapine) was decent but after getting up to > 1200mg/day it was making me really fatigued.
The nortriptyline helped like 60%, the cymbalta another 20-30%, taking the pain to a 2-3 level for a while. I did notice after adding cymbalta I was more social because it toned down the pain from talking/facial expression a good bit. Also seemed to counteract the tiredness from the nortriptyline.
After having an MVD earlier this year I weaned off the trileptal but if I reduced the nortriptyline or cymbalta the pain would creep back. Then I ran out of cymbalta for 9 days and the pain came back full force and I've never gotten back to the level of relief I had, even after taking cymbalta religiously after getting back on it. The MVD only helped for 8 weeks.
The oxycontin does seem to help a bit, at least sleeping better which helps. I don't even feel it anymore, but it does seem like I have more good days now with it.
Riding in a car is my biggest trigger, not sure why, riding in a boat or small airplane isn't bad at all for me.... Usually when I get to work I have to eat a percocet to calm the pain down from the commute, also weekend mornings seem to be terrible, probably from staying up late. Sometimes the percocet works great, other times not at all. I find cannabis helps with less side effects than the percocet, so I got a medical card and usually do that during the day in place of percocet.
Shindig, how did you get your medical card? If you don't mind me asking, what state do you live in? I was visiting california last week and thought I should try to get some medical marijuana but I am not sure it's that easy as I don't live in california.
Also have you heard of this? Teflon?
http://www.birminghammail.co.uk/lifestyle/health/kidderminster-dad-enjoys-first-kiss-6110333
I have been on it for seven years. It worked fine. However I had break .troughs and had to supplement it with lirica and neurotin. I had a glyserole injection I need to take the Cymbalta for three months. I find the Lidoderm patches are great for pain.
That's a AVD surgery.The teflon is used to seperate and decompress the nerve.If you think a few tokes help you,i wouldn't let local laws stop me from using it.I didn't think it did any good for me other than possibly some stress relief.
muneca18 said:
Shindig, how did you get your medical card? If you don't mind me asking, what state do you live in? I was visiting california last week and thought I should try to get some medical marijuana but I am not sure it's that easy as I don't live in california.
Also have you heard of this? Teflon?
http://www.birminghammail.co.uk/lifestyle/health/kidderminster-dad-...
I'm in Seattle. It's $75/year from a naturopath and everyone on here would qualify easily. They even sell vaporizers with disposable cartridges of cannabis oil, no plant matter or smoke.
I believe you have to have a state ID to get a card for the state. Once you have a card you can go to any of several hundred retail businesses (7 days a week) which run as "co-ops" that you join as a member and can shop at (8 stores within 1 mile of my house). They sell live plants, cooking oils, buds, organic hashes, and heavy duty extracts like RSO oil.
With a card you're allowed to grow 15 plants and can possess 24 ounces. I flew to maryland a few weeks ago with a bunch for vacation and it was no problem. I checked online and found countless instances and news stories of people being stopped for it at our local airport, after showing their card they were given their stuff back and let go. I wasn't even stopped. But you're not safe in other states so must be discrete.
I'm employed as a game developer/programmer more than full time so I don't mind sharing my experiences with herb as I feel I'm far from the stereotypical pot smoker, it helps a lot (but has to be very high quality or an extract), and imo it's not as bad as the narcotics.
muneca18 said:
Shindig, how did you get your medical card? If you don't mind me asking, what state do you live in? I was visiting california last week and thought I should try to get some medical marijuana but I am not sure it's that easy as I don't live in california.
Also have you heard of this? Teflon?
http://www.birminghammail.co.uk/lifestyle/health/kidderminster-dad-...
It has to be high quality or an extract AND has to come from a plant with a high ratio of CBDs to THC. It's a little different than most stuff grown to get you stoned. CBDs counteract the THC but are good for pain. The stuff that gets you really paranoid or whatever is usually high THC to cbd ratio.
The higher end "co-op" dispensaries here get samples from each batch lab tested and have a chart for each strain they sell with a breakdown of everything in it from that particular harvest, and even verifies that no pesticides or chemicals contaminate it.
Don said:
That's a AVD surgery.The teflon is used to seperate and decompress the nerve.If you think a few tokes help you,i wouldn't let local laws stop me from using it.I didn't think it did any good for me other than possibly some stress relief.
muneca18 said:Shindig, how did you get your medical card? If you don't mind me asking, what state do you live in? I was visiting california last week and thought I should try to get some medical marijuana but I am not sure it's that easy as I don't live in california.
Also have you heard of this? Teflon?
http://www.birminghammail.co.uk/lifestyle/health/kidderminster-dad-...