Controversially curious

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1

Ok, so this is going to read as something more than a little contraversial, but I just want to know what peoples thoughts are.

Someone here mentioned the use of cannabis recently and after a lot of reading I am going to approach my Dr at my next appointment about the prospect of Sativex, the cannabis derived sublingual spray.

I appreciate that cannabis is illegal, and I am not someone who moves in circles of junkies and dealers, I hold down a steady job for an international bank, I have never had a days unemployment in my life and the last thing I want to do is be breaking the law. I live in a rented house, and if I were to grow plants for personal use I would be in breach of 100 lease terms, and breaking the law, so I am not wanting to do that, neither do I want to be using nasty resin full of ketamine and wood glue and god knows what all else.

From what I have read neuralgia is one ailments best treated by this drug and I am more than willing to try to see if it works, I am already polluting my system with dozens of synthetic chemicals that aren’t keeping my TN to a level that I am happy with, and if a natural substance will help then all the better, the drugs are doing so much, but not enough, and the benefits of some of them are outweighed by the drawbacks of the side effects. Surgery isn’t an option for me, and after not a days respite in 16 months a remission is something I have stopped hoping for, if it happens it will be a godsend but I cannot keep waiting for it.

So my plan is to see what my GP says, as far as I can see, it is currently unliscenced but it is possible to prescribe, so I will see what they say, I doubt they will write me up, but there is no harm in asking.

What are peoples experience in using sativex or cannabis for TN pain? ( I have in the past had success in using cannabis for an unrelated condition, which has not bothered me in years now, and I have not used it since that particular problem cleared up, so I am a believer in its potential, I just wanted to know what other people thought on the matter)

Anyways I am just curious to see what peoples thoughts and experiences are, I haven’t tried this for TN yet, I am going to wait out to find out about the sativex first and I will take it from there.

Anyway much love to all.x x x x x

2

let me know what you find out. i wonder what is in it that helps TN and if it helps nerve pain why hasn’t that componet been used in meds??? any of this stuff has got to affect our systems maybe like anything it’s the dosage. interesting.
julie

3

well back in the 60,s i used to smoke dope started when i was about 17 stopped when i was about 24/25 tried a smoke 30 years on didnt like it i wonder if that has caused my TN

4

Hi Chris, well it is an interesting theory, but I very much doubt that it could have caused it, there are a lot of things that can set this off, but I cant imagine that having a smoke could do it, maybe I’m wrong, but I have done a lot of research on TN, as most of us have and have never read anything to suggest a correlation between the 2, compressions, shingles, trauma, tumours,ms there are a few things that can get it going, but that isnt one I have heard.

I did read recently that LSD can cure clusterheadaches ( just as an aside thought, not sure how that works though)

Anyway, thanks for your comment and I hope you arent suffering too much, whatever the cause.

Love Gracie x x x

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Thanks Ro, I remember you mentioning it, I read about it in the Telegraph recently too, for migraine or cluster headaches, but although I have smoked in the past, LSD is something I’ve never used nor have any notion to use, ( just to clarify for anyone who thinks I might be reccomending it, I amn’t, it was just something I read about recently that I thought I would mention)

Before that I didnt realise it had medicinal uses at all! Anyway you are right and it is a legal minefield, when it comes to insurance, and criminal charges etc, it was just something that I was wondering about and if anyone else has had any success with it. I have a drs appointment on thursday and I am going to ask about oral sprays, ie calcitonin ( I know its not standard but someone on the other forum mentioned it a while ago and its worth asking about) or sativex, and I will take it from there.

Thanks for your input, Ro you are the oracle, :slight_smile: x x x x x x x

6

Grace

I thought they could prescribe the synthetic cannaboids for MS in the Uk now? The research suggests that the inhaled (not smoked) cannaboids are more effective than the other options.
I am a firm believer (science based!!) in their benefit for chronic pain, such as MS; however, TN crosses between acute and chronic so I wonder how beneficial it would be for acute flare-ups.

Interesting blog - thanks
Lizzie

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i also read the research on lsd and psilocybin and being a habitual weed smoker who gets no benefit from smoking weed or eating it tried the psilocybin and lsd ...the pain went away for the duration of the mindblowing trip but returned straight after however i tried some mdma for the first time when in great pain and the first effect within twenty minutes was relaxed body and subsiding pain within an hour i was asleep ...best sleep in a long time followed by no pain whatever for 36 hours....i am reducing doses to see how little i can get away with so far down to about 50mg and still working i cant quite believe this so have stopped taking it gonna wait till the pain gets bad again then try again...i was told to be careful where i get it cos a lot of other stuff being sold as mdma...this is a yellowish crystal and i eat a tiny amount compared to your ravers about a tenth of a dose ....cant believe i suffered for twenty years and never tried this