3+ years ago after facial trauma I too have a form of TN. I have seen 60+ Dr's or Specialists & the majority didnt know what to do to help. I have now moved away from my family to be able to seek treatment from a Neuro Chiro. I had never heard of them & it was only that a friend used this Chiro & had talked to him about me & my conditions & he had said that he believed he could help me. I have only been having weekly treatments from him for 4 months but I do know that I am improving. Its a slow journey, but prior to my move, to start treatment, I was getting worse.
I didnt think it was possible to get any worse than I was. I was completely house bound unless it was Dr appointments & even then, the movement, cold, touch - anything would make my 24/7 pain worse. Too scared to move, talk, eat, read - everything just make the pain worse. No life & I was scared about how to carry on. My issues are complicated by Workcover & their lying Dr's saying there is nothing wrong. Court cases are stressful & our conditions are always exasperated by stress. But for the first time in almost 4 years, I am feeling hopeful about my continued recovery. The best advise is to not stop looking until you find what works for you. My life changing event was when I attended the TNA Conference. The things I learnt was amazing & lead me to the right people and information. Information is power. My previous GP was hopeless & didnt know what to do to help me other than keep telling me that I would get better. After 3 years I didnt believe her any more. The GP I am now seeing has sent me for extra tests & has said there is no way he will let me continue to live like this- he will turn over every stone until I am able to return to life, work & my family. So make sure your Dr's believe they can help you.
My TN1 began within 36 hours of having minor cosmetic surgery to my lip. The electric shocks lasted a week and were then under control with Tegrol, TN2 or ATN began and lasted a year, the nerve then settled and I have been pain free for 2 and half years. I am no longer on medication, I share this as I hope you give you hope xx
Stephanie, I hope the holiday period has been a happy and low pain one and Blake I don't think you or anyone here can put into words what we feel about your little one. Having spent time recently with my soon to be 1 year old nephew, the thought of him having such a terrifying and severe pain condition just breaks my heart. I'm sure everyone's prayers, be they religious or not, or to whatever god they be are with you and your son now more than any other time.
Elstep it is always good to hear success stories and yours gives us all hope. Catching it early and medicating with the right types and amounts of medication for the appropriate period of time gives the best chance for success, as well as avoiding aggravating factors - I'm sure you'll have learned what yours are.While treating TN2/ATN can be less successful than "typical" TN1, these types of medications are still a cornerstone to a efficacious pain management plan.
Here's wishing to all, a comfortable new year and a low pain 2014 and beyond.
Yea mine is from truama. I havent worked in 2 years and that in itself is hard on the psyche. The day to day nonstop pain (except for miraculous instants of minuutes where there is no pain and you feel crazy and then it comes right back) is always there. It affects my ear and muscle tension. My face burns, aches hurts, stabs, It doesnt just have a face. Pun intended.
But there are good times when you have good ideas, and other times when you feel a rush of joy you havent felt in so long. Anyways, i hope you get better, but I do value how I myself am not alone.
PS dont rely on medications but dont stop looking. I took Klonopin nortryptiline carbamazepine nuerontin all failures except nuerontin helps a weensy bit... Im going to ask for baclofen and amitiripiline maybe that will help.
I have amitiripiline I hate the side effects though so I don’t take it ^.
The no working is making me crazy. I also am a single mother and had to move in with family. This is a new yr so I’m keeping my hopes up. We can’t let this beat us
So sorry to hear of your pain Stephanie. Mine was caused by trauma and multiple "little" things over the years that add up. I've been through the hopeless nonending pain as well so keep trying different things until you find something that works. I was diagnosed with Atypical TN last year, but now after being on this website someone else told me that it sounds more like I have Occipital Neuralgia with the stabbing pain in the left eye and throughout the left side of my head and base of skull that is just unbearable. Thankfully my doctor placed me on Topiramate and Buspirone which have really helped me a lot.
You are right though, nobody really gets it that doesn't have this. Even my own brothers keep asking me what is wrong with you again? Like they just don't hear you or don't understand. I don't know. Maybe it's difficult for them to actually hear it. Thankfully I've been a bit more normal lately and can actually hold a conversation with them besides lie in bed.
As you are aware, God is so very good...and unlike what most people think, He did not do this to you. God loves us more than any human is capable of loving us. I strongly feel that Jesus was here and He not only paid for our Salvation, but He also paid for our healing, and there is always hope. So never give up and keep praying. I've found a lot of help through the Andrew Wommack Ministries if you are so inclined. He's a wonderful man and has a lot of free audio teachings on the Bible if you would like to listen to them. They bring me a lot of peace when I need it. You can find his website at AWMI.net.
You are never alone Stephanie. You have a lot of friends here including me that are here for you anytime. I would be glad to pray for you if you would like as well.
