I fell and broke my jaw 3 yrs ago in 3 place. My TN is caused by trauma. Does anyone else have it due to trauma? I’m in pain/burning all the time. I am on gabapentin and have a spinal cord stimulator.
I have read how people are pain free with meds or in remission. I only dream about those days.
I am getting bilateral joint replacement on my mandible in feb. That will help with my jacked up jaw but will not touch my TN. I feel like my whole life has flipped upside down. I’ve lost my job which I loved. I feel so lost and alone.
You are not the only one :(
I too suffer from constant pain. Terrible, agonising pain that you wouldn't wish on your worst enemy.
I believe it was caused by trauma. I like you are still no further forward in finding a resolution. I'm on Lyrica and Trileptal, but it does nothing for the pain.
I believe we just have to stay strong, and pray that one day a cure will come...
I started having the burning sensation about a month ago on my right side so I feel your pain. Have you tried lidocaine patches or cream?? I have been using them for the past few weeks and can tell a huge difference!! Someone mentioned it on this page and when meds weren’t working, I called my MD and asked if I could try it. I can still fill it but it is way more tolerable and also try to focus on other things! Those are 2 great tips!! It still is there but instead if a “10” in pain it’s usually 2-5!!
My pain is more of a stabbing pain that a burning. As if someone was trying to pull out your teeth whilst gouging out your eye and stabbing behind it :(
PrettyGirl said:
I started having the burning sensation about a month ago on my right side so I feel your pain. Have you tried lidocaine patches or cream?? I have been using them for the past few weeks and can tell a huge difference!! Someone mentioned it on this page and when meds weren't working, I called my MD and asked if I could try it. I can still fill it but it is way more tolerable and also try to focus on other things! Those are 2 great tips!! It still is there but instead if a "10" in pain it's usually 2-5!!
Have you tried to add lidocaine patches for face. Or lidocaine mouthwash in the inside?
Stephanie, I really feel sympathy with your situation. I seem to have the same sort of pain, but from a different cause. Some years ago I had a bilateral mandibular osteotomy (my jawbone was cut on both sides and repositioned to correct an open bit deformity). I can't say positively that it was this operation that eventually caused the TN, but I do have pretty constant aching, burning and pain upon chewing, etc. Your upcoming surgery appears to be similar to mine. The arteries, nerves, etc. all come so close together in that area. Wishing you the very best of luck and please keep us posted as to your progress.
Warmest wishes,
Christine
You are not alone. Mine was also caused by trauma and please know that you are loved by someone and here, you are definitely heard.
I am also on gabapentin and have the Med Tronic stimulator across my forehead. I still have the pain and burning none stop, but my Dr. has added Methadone. It helps a little more, but I do sleep a lot more. Believe me it is 10 times worse when my stimulator needs charging, so very glad I have it. I have TN not from a trauma. Hope you find relief soon. Best of luck.
Mine was also trauma caused. Stephanie, I sympathize because my life has also drastically changed and unless there's a cure, this is my new norm. But I refuse to let it beat me down!
Twenty-six years ago I was in a car accident that resulted in a cervical fusion that collapsed followed by a 2nd fusion. Fusion was a success, but since then I have neck pain and severe migraines. Then came the deep burn in my left jaw and lower teeth--(multiple root canals and teeth pulled) until November 2012 when I was diagnosed with a compressed TN nerve, but was not a MVD surgery candidate because my pain at that time was Atypical. Since then I've become Typical/Atypical and bilateral in T1 T2 and T3. I'm one of those specimens that doctors love to sink their teeth into--if only the bite would cure me. lol
Like you I'm in pain 24/7. I'm on multiple meds and also use a new external cream med prescribed by my pain management doc. The cream is made specifically for each patient's needs by Dermatran Health Solutions. I've also done Botox last month and it has provided some relief for both the migraines and TN, but by means am I pain free or able to function outside the home.
Stephanie please don't give up hope? You're not alone!
I agree with DannyG86 we must stay strong and inform the medical community and the world that we are here. Most of all, I rely on God to get me through each day and He does!
If you want to talk after Christmas email me at: ■■■■■■■■■■■■■■■■■■■
Blessings,
Linda
I can't really say what caused mine. I did fall on ice and started having several different issues. Now I'm just trying to make from day to day. It's difficult for others to understand or relate because this is something no one can ever imagine what it's like. Fortunately I don't work any more so I don't have that problem. Hope things get better for you.
I’m sorry that you feel so alone…you are not!!! I’ve been in constant pain since surgery to remove a brain tumor on the trigeminal nerve 15 years ago. I have such bad reactions to a multitude of meds, that the only meds I can take now are Gabapentin and codeine. It doesn’t work well, but its better than nothing. The whole thing is terribly depressing but, as others have said, we’ve just got to find the strength within to go on. I have found that doing volunteer work for a few hours a week takes my mind off myself and lifts my spirits. Blessings to you!!!
This time last year I took myself off of methadone. It did help I just didn’t like being in it. I have tried lido patches and special creams/compounds. The patches help but are not covered by ins.
Thanks for the responses because I do feel like no one gets it.
I do get out but it’s hard to plan things as you all know.
I did find a relationship with God so I do know He is there I just still have doubt some days the bad days the hopeless days.
I love me family so much. I have 2 grandchildren that I want to watch grow up and 4 children that mean the world to me.
I’m so grateful that I found this page.
Does anyone know if it’s caused by trauma do you ever have a chance or remission?
I HAD VERY MINOR TN UNTIL AFTER PLASTIC SURGERY WHICH MADE IT TERRIBLE DUE TO THE TRAUMA? IT HAS BEEN CONSTANT FOR ABOUT FOUR YEARS. BURNING TINGLING PAIN ON ONE SIDE OF FACE ESPECIALLY EYES. TRAMADOL HELPS BUT DOES NOT TAKE IT AWAY. PRAYER! AND KEEPING BUSY HELPS ME COPE. HAVE NEVER HAD REMISSION?
Dont give up! You can do this! I know you can
I have never had remission either but I read about it on here all the time. I lost my job. I am going to try volunteering on my good days. The beginning of feb I’m have bilateral joint replacement done on my jaw so I can’t even look for work. I know this is a day to day thing but it really does run your life. I think not being able to be a firefighter/paramedic has just hit me and has made me very sad. I loved that job and now I feel lost. I’m 43 and just don’t know what do to???
Wow. Im 44, i know! But just dont let the darkness take over your spirit …keep moving and dreaming,.im with you and i know we all are, .
So you feel my pain lol… Thanks for the support
I dont know if i can say this but…Have a merry ,lol
Yes you can and I hope you have a merry Christmas too maybe next yr will give us all more hope and new medical break throughs 
Stephanie,
I am so sorry that you along with so many of us must endure. I am pretty sure that mine was triggered initially by a blow to my face on several occasions, but no on has ever defined that as being the cause. All 100 plus doctors Ive seen have been reluctant to identify an absolute cause and I have been in pain everyday for 13 years. It's my understanding that each persons brain identifies Trauma differently, so what may hurt you may not hurt me, if you get that point. I had a bone growth on my lower gum line and it looked like a root to a tooth. I went snorkeling and I struggled with the plastic rubbing on the bump, so I went to my dentist and he said he could remove it. It was surgery and it took 3 hours to get the bump out of my gum line. I also have TMJ and TMD so my jaws post operatively locked shut, for three years I remained locked shut. Finally after 3 years I was opened but with much stress and strain. For what seemed a brief moment I was okay, then as quick as it was locked hut, it became locked open. The pain was tremendous and relentless and nothing has changed for 13 years. I have done every type of therapy, splints, medications and nothing but horrid side effects from the medications and found that pain management makes you a drug addict. I was narcotic free for a year and then my advanced version of this disease decided to kill me. I woke to a lightening searing pain in ear, jaw and face, I could not speak and was paralyzed from the waist up, my lungs collapsed, my disease told my brain that it was too painful to breathe so it shut down my lungs. Five days in the hospital no one had a clue what was wrong and the night before I left I had what everyone thought was a heart attack but in face it was a stroke. I was given Morphine and Diladed, once again I had to detox from the medications, and they wondered why I wasn't making sense. They discharged me the next day, I have not been right since. I am planning on having the Micro Vascular Decompression surgery as soon as I gather 10 years of medical records. I am at a loss to say there is a happy ending but, we don't know if that will do more harm than good. I will stay in touch and let you know if it works. I will keep you in my prayers and remember you are not alone. Love and light, Lovey