Hi,
I'm new to the sight. I am so confused by the Dr. regarding this diagnosis. I have had face pain on both sides of my face on and off foe about ten years each episode lasting about a day. At the end of Dec. I was in my car on the way to Az. and the pain kicked in I figured it would last a day and I could go on with my trip well that didn't happen the pain hasn't stopped at all. I was able to get in to see my GP and she believed it to be TN but because I 'm with Kaiser for some reason she vouldn't each in stone. She gave me vicoden and said if that didn't work we could go to percocet. Well that didn't work saw another Dr. who is also a GP he said he also believed it to be TN but again couldn't write it in stone. One more Dr. visit same thing. I had an appointment with a neuro but it was way off in the future 2 1/2 months. Well I complained and they found an appointment for me. At my visit she said she wouldn't call it TN but wouldn't rule it out. Because I am bipolar I already take a lot of the meds that are perscribed for TN, she increased my triliptal to double what I was taking ( with my psychiatrist ok I insisted ) it made me so sick I couldn't handle it I was on it for a week. I emailed my neuro she gave me lyrica didn't work and made me feel drunk I couldn't do anything. I had an MRI on Tues but my neuro said she didn't have hope that it would show anything. Because it's bilateral and rare they donn't know what to do. She keeps treating me for TN but won't say that it is because " bilateral is so rare". It seems like either be crazy or don't have pain. I don't know what to do to get these Dr. to listen to me. I have severe pain it lasts all day and the only relief I have is when I sleep at night the pain is like thousands of needles trying to push out of my face including my eyes. Help please.